Has anyone been afraid of getting treatment?

I have the type of vitiligo that has not spread or has improved in years. I first noticed my vitiligo when I was 10 years old and it was and still is about the size of my fist and its over my right breast. I never have gotten treatment for it, and when I read some of the discussion topics about treatment and the vitiligo returning and spreading worse than before, it makes me a little hesitant to try and seek treatment. Does anyone else have vitiligo on a similar area and has gotten treatment that worked? Should I just not bother to get it treated because it hasn't spread?

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  • I think it effects each person different it could have no effect it could clear it up I've tried protopic steroid based cream and also tried UV light treatment which they give you tablets to thin the skin to make the light more effective it didn't help me it just made my skin feel like it was going to rip if I scratched to much
  • Thanks for the post, Resha.  I'll call it reluctance, versus fear, but it's really the same thing.  My reluctance is due to medical reports regarding skin cancer and lymphoma in users of topical tacrolimus, i.e., Protopic.  From what I understand the numbers are low and in the neighborhood of 39 in 100,000.  However, I keep wondering how long tacrolimus has been in use and whether those numbers will rise, in time.

    I'd like to treat the corners of my mouth and under the lip with it because folks here seem to have had great success with it on the face.  I'm concerned, however, that invariably the ointment will migrate into the mouth, due to ointment's characteristics of spreading from the area on which it is applied.  For some reason I'm not as concerned about the Protopic being on my skin, but inadvertently ingesting some of it each day gives me ... reluctance.  ;-).

  • Try protopic it really worked for me

  • I would say if your vitiligo is not spreading then just don't try any treatments. It may trigger your vitiligo.

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