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My Story - Vitiligo and Xeljanz

Posted by Kevin Mulder on November 11, 2015 at 12:41pm in Main

Hi all,

going to start a blog about me taking the new drug Xeljanz (that helped the woman in the Yale study to cure Vitiligo). I am doing this off-label and I am hoping for some good results. If this works, I want this blog to push organisations to speed up the process of funding the much needed research for Tofacitinib and Xeljanz and how it can help us Vitiligo sufferers. Please read and keep following if you are interested in how this goes. I know I am.

Link

My Blog

First entry

Regards Kevin

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Replies

  • Tom M January 4, 2016 at 12:01am

    Kevin,

    Thank you for documenting and posting your experience with Xeljanz.  I visited your excellent blog and found it very informative.

    I am hopeful for you!

    Tom

    • Kevin Mulder > Tom M January 4, 2016 at 12:49am

      Thank you Tom! Will keep going. Hope you keep enjoying.

      Best regards Kevin

  • R. Salcedo January 3, 2016 at 4:47am

    Hi Kevin,

    I am starting xeljenz.  Taking 5 mgs twice per day.  I will let you know if I see any changes.

    • R. Salcedo > R. Salcedo January 4, 2016 at 2:39am
      Btw, I am going to do 1x a day for a week before upping it to 2.
    • R. Salcedo > R. Salcedo January 4, 2016 at 2:37am
      No, I saw my dermatologist and an RA specialist. I had blood work and then they played me. But my derm suggested to do it with laser.
    • R. Salcedo > R. Salcedo January 3, 2016 at 9:43pm
      Maybe not. Stomach is rebelling. Are you doing laser therapy or protopic as well?
      • Kevin Mulder > R. Salcedo January 4, 2016 at 12:48am

        No laser therapy or protopic for me... Doing it all natural ;-) haha.

        Keep faith though, my stomach started rebelling as well when I just started 1 x 5 mg every other day.. You just have 4 x as hard.. ;-)

        No problems anymore, it got 'used to it', I guess.

        Are you doing this unsupervised?

    • Kevin Mulder > R. Salcedo January 3, 2016 at 9:33pm

      Wow, That's amazing, are you sure you want to start that fast? Good luck and let us know, thank you!!

      Best regards Kevin

  • Kevin Mulder December 5, 2015 at 10:09am

    Hi All, just wanted to let you know I started taking Xeljanz today :-)

    Click here to see it :-)

    Thanks and cheers!!

    Regards Kevin

    • Robot > Kevin Mulder December 6, 2015 at 6:38pm


      Kevin, it's amazing!

      2 things:

      1- Because of this treatment delay, are you still traveling in January?

      2- I've read your blog. It makes sense the fact that  old patches are more resistant to react to treatments.  I personally believe that it's because the amount of MIA protein that has been accumulated in there...

      Cheers!

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