Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

ram replied to ram's discussion 'Vitiligo n tofacitinib treatment'
"thnx robot"
1 hour ago
Robot replied to ram's discussion 'Vitiligo n tofacitinib treatment'
"Hi Ram, There is not enough evidence that this drug is effective. I know that we are looking desperately for a cure, but this product does not seem to be the one. Sorry."
7 hours ago
Sneha updated their profile
20 hours ago
ram posted a discussion

Vitiligo n tofacitinib treatment

dear members, has anyone got some info on treating vitiligo with tofacitinib (arthritis treatment drug identified by Yale university) ? this medicine is from Pfizer is very expensive apart from that not sure about the side effects. pls help if…See More
Saturday
Robot replied to Robot's discussion 'Any similarity is not just coincidence. It's the same oxidation!'
"Go for it. Selenium has protective effects against UV radiation-induced damage. However, UVB narrow band therapy does not cause any damage, if properly done. UVB-NB is just a small range of the UV spectrum."
Saturday
Sanjay saxena liked amritha francis's profile
Saturday
Mike Corion liked Naina's profile
Saturday
Venkatesh Jakka joined Miguel Meza's group
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California Support Group

Trying to get everyone with vitiligo a little closer to each other... for that special shoulder to lean on =)
Saturday
monica updated their profile
Friday
Mikki joined Michael Spruill's group
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Vitiligo Singles

A place where singles can meet other singles and get to know eachother better.
Friday
Sue replied to Robot's discussion 'Any similarity is not just coincidence. It's the same oxidation!'
"I'm currently using UVB therapy for Vitiligo and was thinking about taking Selenium due to it's antioxidant properties. However, it also blocks UV radiation which may not be effective for treatments. Any thoughts?"
Thursday
Profile IconJack Lamar, Sejal Patel, Mikki and 2 more joined Vitiligo Friends
Thursday

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Vitiligo n tofacitinib treatment

Started by ram. Last reply by ram 1 hour ago. 2 Replies

dear members, has anyone got some info on treating vitiligo with tofacitinib (arthritis treatment drug identified by Yale university) ? this medicine is from Pfizer is very expensive apart from that…Continue

Any similarity is not just coincidence. It's the same oxidation!

Started by Robot. Last reply by Robot on Saturday. 12 Replies

Hi Friends,All the pictures below have one thing in common:  The oxidation caused by free oxygen radicals. Despite the effects are noticeable on the surface (skin), the damage starts usually from…Continue

"can normal indian boy love or marry a gal suffring from vitiligo?"

Started by kinjal sahu. Last reply by Loveday Mumba Feb 12. 55 Replies

 "a normal boy LOVE or MARRY a gal suffering from vitiligo !?!''Continue

Is it right

Started by jagu. Last reply by Michael Ompoc Feb 11. 14 Replies

Who said cancer & aids r the deadliest disease in da world it's completely wrong dis both kills da person in a particular time. But vitiligo kills da person each nd every second untill…Continue

related vitiligo treatment

Started by Deep. Last reply by Sheeshee Feb 6. 15 Replies

hello friends , How are you all. Hope you people will be doing great. There are some seeds which can help to recover from vitiligo. I have tried and saw positive result from this. Water melon seeds,…Continue

Vitiligo on hands (bad and good news)

Started by Robot. Last reply by Robot Feb 1. 11 Replies

Friends,It took me a while to decide to write this post about vitiligo on hands.  Although the post is strait forward regarding the very low chances to re-pigment,  it also brings good news about…Continue

How to avoid being scammed

Started by Robot. Last reply by Robot Jan 31. 4 Replies

Hi Friends,Be aware of the following SCAM pattern:1- A new member signs up;2- In a few days, this member starts posting stories and/or pictures to tease other members;3- Then this member creates…Continue

Are you having difficulty locating MBEH (e.g., monobenzone or Benoquin) in the U.S.?

Started by Jackie O Jan 29. 0 Replies

If yes, feel free to contact us at afceducation48123@aol.com or info@ceusforyou.com. (Locating the medication is one of the biggest hurdles of depigmentation therapy.)  We have a list of pharmacies…Continue

depigmentation

Started by janis gordon. Last reply by Jackie O Jan 26. 14 Replies

has anyone tried depigmentation, and what are the side effects if any. Continue

Something I want to share about vitiligo

Started by Abhishek. Last reply by navin Jan 25. 6 Replies

During 2014 to 2015 I was taking Melanocyl(Tablet) alternate a day and Omnacotyl 10 (Tablet) once a week. usually doctor told me to take medicine in the Morning after breakfast but actually I was…Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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