Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

santoshsivam liked Prarthana Jagan's video
5 hours ago
Saurabh Misra replied to Saurabh Misra's discussion 'Pc-kus(Pseudocatalase) made by copying the information on Internet- is it effective?'
"Flavio, it seems your reply got deleted. Ok, I checked- the email k.schallreuter@bradford.co.uk - she does not use it anymore. I don't like what's being done - see these videos for example- her patients have recorded her sessions…"
6 hours ago
ahmed posted a status
"i just started photochemotherapy has anyone tried it before?"
21 hours ago
Flavio 勇気 replied to Saurabh Misra's discussion 'Pc-kus(Pseudocatalase) made by copying the information on Internet- is it effective?'
"It seems you have done a better job than me.  keep doing. First time I had it was from an American Pharmacy (without Neribas, but Vanicream).  I think that if EDTA was really essential, the American Pharmacies would use it... After…"
21 hours ago
Saurabh Misra replied to Saurabh Misra's discussion 'Pc-kus(Pseudocatalase) made by copying the information on Internet- is it effective?'
"Flavio, are you not Flavio Coragem? I saw your comment at fightingvitiligo.com and also here in one of the discussion I saw you mention your email as fcoragem@gmail.com? That's how I came to know about your son and that your sweetheart has…"
22 hours ago
Flavio 勇気 replied to Saurabh Misra's discussion 'Pc-kus(Pseudocatalase) made by copying the information on Internet- is it effective?'
"I agree that Prof should have spread her knowledge world-wide.  She should have replicated it by training other medical centers without compromising her  financial goals. Much more people would have had access to her treatment, which is…"
23 hours ago
Jim Smith replied to Jim Smith's discussion 'Inspiration?'
"Glad to hear that, Flavio. I feel most of the gold to be found is still buried in the ground."
23 hours ago
Suchetana A Naik liked Mitali Narkhede's profile
yesterday
Mitali Narkhede updated their profile
yesterday
Profile IconJason womack, Hurdie Larry Jeffries Solis, Christian Vuye and 1 more joined Vitiligo Friends
yesterday
Saurabh Misra replied to Saurabh Misra's discussion 'Pc-kus(Pseudocatalase) made by copying the information on Internet- is it effective?'
"Dear Flavio, Before the video, I need answers to the following- 1. Can I reduce the amount of MnCl2 in the preparation from 380 mg to a lesser amount. As in the papers it's shown to be 10.8% but I have read elsewhere in another study that to be…"
yesterday
Flavio 勇気 replied to Jim Smith's discussion 'Inspiration?'
"This site was my starting point.  Very inspiring!  Caroline is amazing. True your words.   I've been asking too many questions to researchers like  Dr. Bordignon, Dr. Harris, Prof. Schallreuter, Dr. Holla, Dr Sanjeev…"
yesterday

Events

 

Members

Forum

Pc-kus(Pseudocatalase) made by copying the information on Internet- is it effective?

Started by Saurabh Misra. Last reply by Saurabh Misra 6 hours ago. 10 Replies

I am going to try a new treatment regimen consisting of supplements, Ginkgo Biloba, Dead Sea salts and minerals, UVB, diet regulation and self made Pseudocatalase (pc-kus/pc-cat).On sites like…Continue

Inspiration?

Started by Jim Smith. Last reply by Jim Smith 23 hours ago. 10 Replies

Hi All,Since joining this group a couple years ago, I've yet to come across anyone who has experienced extensive and permanent repigmentation. Prior to joining, I contacted Steve Hargadon, and my…Continue

Newbie here! Would appreciate some feedback.

Started by Anna . Last reply by Jackie O Nov 23. 10 Replies

This is all new to me. I have a 6 and 7 year old who do not have this disease yet my 5 month old was just diagnosed with it. I am scared, don't know what to expect, how bad and how fast it gets worse…Continue

Elidel (pimecrolimus) 1% works

Started by dennis guzman. Last reply by Sheelam Thomas Nov 19. 17 Replies

HI everyone ,I have not been to this site since I was 21.I am 25 now and my vitiligo is almost all gone.I have had vitiligo since I was 13 and know how painful it is to be different.I have been using…Continue

Vitiligo spreading without trigger

Started by Amy Clements. Last reply by Flavio 勇気 Nov 18. 8 Replies

I have had vitiligo for 13 years now and I haven't had that many issues when it comes to it spreading as it has only ever caused a new patch once every few years or so. However, in the last year I…Continue

How to check the body's Oxidative Stress level

Started by Flavio 勇気 Nov 13. 0 Replies

Friends,As we know, oxidative stress plays a relevant role in skin diseases (also vitiligo). However, how can one make sure if his/her body is oxidized or not?Please find bellow a Oxidative Stress…Continue

Yeah, and when you blow your nose, don't wipe it ...

Started by Tom M. Last reply by Tom M Nov 13. 35 Replies

You know, because all that skin "friction" ....Remember not to roll over when you sleep, too!  Only sleep on your back.  Don't wipe your mouth!Pfff....A self-ascribed "expert" on this forum actually…Continue

How to find the cause and to get doctors to take you seriously?

Started by Hattie Rose. Last reply by Flavio 勇気 Nov 13. 16 Replies

Hello,I am UK based and have suffered with vitiligo since I was about 14. It is only over the last 3 years that it has begun to rapidly spread across my body and now I am very self conscious and it…Continue

Only read this post if you really want to fight vitiligo

Started by Flavio 勇気. Last reply by Flavio 勇気 Nov 13. 2 Replies

Hi Friends,I was checking recently my medical paper library (384 papers) and I thought it could be helpful to select the 3 most important ones according to my opinion.Please find them attached.Read…Continue

My successful treatment methods

Started by VitiPatch. Last reply by Flavio 勇気 Nov 10. 6 Replies

Hi everyone, English is not my native language so sorry if i will make too much mistakes.I wanna share with you my three methods of treatment that help me the most.Please visit my site:…Continue

Tags: dead, sea, salt, naltrexone, LDN

Chat

Active Conversations

Disconnected (1 online)

    Disconnected

    You are disconnected from chat. Connect to join the chat.

    Suspended From Chat

    Sign up to chat on Vitiligo Friends.

    Sign Up

    Photos

    Loading…
    • Add Photos
    • View All

    Videos

    • Add Videos
    • View All
     
     
     

    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

    Badge

    Loading…

    About

    Translate Ning
    Click on flag to open new window in your language. For different language close window and repeat. Signing in reverts site to English. Code at Translated.

    Map

    © 2016   Created by Steve Hargadon.   Powered by

    Badges  |  Report an Issue  |  Terms of Service