Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

deruth gupta joined Imani Payne's group
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Teens With Vitiligo

Just a place to meet more people your age with vitiligo!  :)
1 minute ago
deruth gupta liked Imani Payne's group Teens With Vitiligo
1 minute ago
deruth gupta liked elena's photo
6 minutes ago
deruth gupta liked elena's photo
7 minutes ago
Naina replied to Naina's discussion 'severe sunburn'
"sun burn, scratches and stress all these are major cause in my case. avoid such things."
4 hours ago
FLAVIO replied to Naina's discussion 'severe sunburn'
"All these (sun burns, scratches, cuts, hits, punchs, violent moves, etc.) are under physical trauma umbrella. They all cause vitiligo."
7 hours ago
FLAVIO replied to FLAVIO's discussion 'Martial arts are very bad for vitiligo sufferers'
"Unfortunately,  some people don't want to accept the idea that physical traumas are one of the main causes of vitiligo.  As well as oxidative stress. Emotional/Psychological stress complement the top 3 list. For more info, check:…"
7 hours ago
FLAVIO replied to FLAVIO's discussion 'Martial arts are very bad for vitiligo sufferers'
"Definitely trauma. Traumas (specially near joints) produce a bad protein that detachs melanocytes. This protein is the same that dettaches melanomas.  It should not be produced, but it is in vitiligo pre-disposed people. Binding this protein,…"
7 hours ago
Sheila Belcher posted a status
"Hellooooooo"
9 hours ago
Cy liked Joel zarate's discussion Don't waste life on things you can not change...
9 hours ago
Cy liked Jim Smith's photo
9 hours ago
Cy replied to FLAVIO's discussion 'Martial arts are very bad for vitiligo sufferers'
"Yeah since i started training jiujitsu a couple years ago it seems like my spots have spread more... didnt know if it was caused by normal spreading or trauma. "
9 hours ago

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Forum

severe sunburn

Started by Naina. Last reply by Naina 4 hours ago. 10 Replies

Hey allrecently i went to a beach and spent 3-4 hours there during day time around 11am to 2 pm. I got blistered sunburn over my both the hands ,above eyebrows and near neck as they were exposed to…Continue

Martial arts are very bad for vitiligo sufferers

Started by FLAVIO. Last reply by FLAVIO 7 hours ago. 3 Replies

Hi All,Who has never heard someone saying that Martial Arts is good for vitiligo?Don't buy it !  It's very bad for vitiligo sufferers...I admire a lot the UFC fighter Scott Jorgensen for 2…Continue

Relationships

Started by Bijal. Last reply by Cy 9 hours ago. 7 Replies

Hi guys, I was wondering how you all have got on with your relationships. How easy/difficult has it been to find a partner and what has their reaction been to your vitiligo?Should people with…Continue

dating

Started by Crystal Jones. Last reply by Cy 10 hours ago. 4 Replies

Hey Family, I went on a singles site and I was honest. I put my perfectly flawed picture up and I received  a lot of responses. I went on a date and it was horrible!!!! He looked at me like I never…Continue

VITILIGLOW - a camouflage spray for skin

Started by polly gotschi. Last reply by Graeme Mc yesterday. 63 Replies

Hello Fellow Vitiligans,After nearly 20 years of having the skin condition VITILIGO I now have white patches (loss of pigmentation) on my face, hands, armpits, hips, knees and feet. I have tried just…Continue

Anyone here from London, UK

Started by Rochelle. Last reply by Louise yesterday. 1 Reply

Trying to set up some sort of discussion/forum or otherwise for people in the UK. Maybe a few meet ups etc.. Just to see how others cope with having Vitiligo.

New Medication

Started by MARIA ELENA GONZALEZ. Last reply by JJ on Saturday. 12 Replies

HI All,My daughter suffers from Vitiligo since she is 5, now she is 14 and she has repigmented a little with UVB  treatments at the Dermatologist office. Recently He prescribed a new medication which…Continue

Autoimmune Protocol for Vitiligo

Started by Maria Seager. Last reply by Kaitlin Ohlinger May 20. 7 Replies

I've started a very strict, nutrient dense diet called AIP. I started it in December of last year along with a fantastic diagnosis of rheumatoid arthritis. (yuck) From what I have read Vitiligo and…Continue

skin grafting

Started by rebeca. Last reply by FLAVIO May 18. 3 Replies

Hi  can someone please tell me about skin grafting and punch grafting, because i intend to visit the doctor tomorrow before that i need some information. is it good or bad? ThanksContinue

HELP (excimer laser treatment trouble)

Started by Saachi. Last reply by Joyce OB May 17. 5 Replies

I started doing the excimer treatment on March 31. I go about twice a week every week. I know that it is radiation which is likely to cause fatigue, and I have been extremely tired. I would fall…Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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