Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

Karen replied to Annette bezzina 's discussion 'pigment appearing in white patches, no treatment being used'
"There is a book online written by a dad who helped his daughter recover. Google "Emilys Vitiligo" written by her dad Eric Fricker it's been the best sources of information I have found. He finally got her to repigment, it took years.…"
12 minutes ago
FLAVIO CORAGEM replied to FLAVIO CORAGEM's discussion 'Understanding the cruel Koebner effect in non-segmental vitiligo'
"I'm sure that there are many types of vitiligo.  Many are correlated to other auto-immune diseases, lead toxicity, adrenal fatigue, whatsoever. But NSV, the one that is symmetrical, that spreads in the regions  described in the…"
28 minutes ago
MichaelH replied to FLAVIO CORAGEM's discussion 'Understanding the cruel Koebner effect in non-segmental vitiligo'
"I'm pretty much open to any possibility. There is however something that really hasn't been discussed much: while the end result is the same (white patches due to a lack of melanocytes), there may very well multiple ways that the patches…"
35 minutes ago
Karen replied to mimi's discussion 'vitiligo around my eyes'
"Victoria secrets has a little compact with green coverup makeup it was on sale for $15 I didn't buy it but thought about it...it comes with several different concealer colors. Good luck. Even dermablend if you can buy at Dilliards…"
36 minutes ago
FLAVIO CORAGEM commented on Karen's status
"Hello!"
39 minutes ago
Karen replied to mimi's discussion 'vitiligo around my eyes'
"There used to be some great makeup videos on this website where they show you how to apply the make up, and she recommended certain make ups. I really like bare minerals I use their creamy concealer and their stroke of light eye brightener under my…"
41 minutes ago
FLAVIO CORAGEM replied to FLAVIO CORAGEM's discussion 'Understanding the cruel Koebner effect in non-segmental vitiligo'
"Remember that there are 4 causes: 1 Primary (genetic) and 3 Secondaries. The weight of each is very personal.  The sequence explains how it get triggered. About your examples: 1- If you are under a real oxidative stress, you don't need…"
43 minutes ago
MichaelH replied to Annette bezzina 's discussion 'pigment appearing in white patches, no treatment being used'
"In rare cases vitiligo has been known to repigment, particularly in younger children since their cells are multiplying at such a rapid rate as they grow.  Unfortunately the reverse is true as well and some children see VERY rapid expansion of…"
56 minutes ago
Karen posted a status
"Hello friends! It has been awhile since I have been on here. I thought I would stop in and say hello!"
1 hour ago
MichaelH replied to FLAVIO CORAGEM's discussion 'Understanding the cruel Koebner effect in non-segmental vitiligo'
"Several widespread studies have shown that only ~10-15% of vitiligo cases exhibit the Koebner Effect.  Take me for example, I have vitiligo but after a massive number of stitches (32 in two locations due to an exploding glass pane) about 9…"
1 hour ago
FLAVIO CORAGEM replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"Phototherapy is the best way to stop vitiligo from spreading.  But it has to be combined with a functional treatment that includes supplements, anti-oxidants, food habits, relaxation.  Another mandatory action is avoiding physical traumas…"
1 hour ago
FLAVIO CORAGEM replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"Not really the same in all versions, but similar.  They differ in the base cream and the absence or not of Calcium Chloride.  Anyway, you can test if they work well based on the described methodology…"
1 hour ago

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Forum

pigment appearing in white patches, no treatment being used

Started by Annette bezzina . Last reply by Karen 12 minutes ago. 3 Replies

Hi, I joined this group as my baby girl who is 5 months old  has been diagnosed with vitilgo. White patches appeared on her legs but then started to develop pigment again. Does anyone have experience…Continue

Understanding the cruel Koebner effect in non-segmental vitiligo

Started by FLAVIO CORAGEM. Last reply by FLAVIO CORAGEM 28 minutes ago. 4 Replies

Hi All,I would like to share with you my understanding about non-segmental vitiligo development.In my opinion, the sequence is like this:1)Genetic pre-disposition (PRIMARY cause) => Can or can not…Continue

vitiligo around my eyes

Started by mimi. Last reply by Karen 36 minutes ago. 9 Replies

Hi everybodyI am asking anyone who can help me to hide my white patches near and around my eyes.I have tried the make up but find it difficult to use in some patches where the skin is very smooth and…Continue

The Dead Sea Treatment and Dr.Schallreuter

Started by Maria Seager. Last reply by FLAVIO CORAGEM 1 hour ago. 12 Replies

Hi guys. I've been searching near and far since my vitiligo is starting to spread more then ever. Guess I'm looking to put out the inevitable fire if you will. I've read up a lot on this doctor and…Continue

Tags: #PCAT, #DeadSeaTreatment

Alopathic or homeopathy?

Started by jasleen. Last reply by Dhruv Mahajan 3 hours ago. 19 Replies

What is right treatment alopathic or homeopathy?my daughter is 7 years old with two patches on her body .right now I am using protopic. I want to start homeopathic now now I want to know is their any…Continue

Lukoskin By DRDO - Indian Medicine

Started by Mandeep Loomba. Last reply by jitendra malik 9 hours ago. 2 Replies

Hi All,I am Mandeep, from India, age 35 years, started vitiligo in June 2011. Since then vitiligo covered my one hand, elbows, eye brow upper area and small patch on my cheek.I tried homeopathy,…Continue

Behavior Guidelines in Our Vitiligo Friends Network

Started by Steve Hargadon 13 hours ago. 0 Replies

Dear Friends:Running a network like ours is a balancing act.  There are many who try and gain entrance to the network for the purposes of spamming. Every day I go through the process of looking at…Continue

HEAL THY FACE!

Started by teh ben. Last reply by Hector yesterday. 65 Replies

Forget my body, just my face!I am 21 years old and ive had this satan disease for 10 years. here's my history of "treatments"1.topical lotions=bullshit2.laser/uvb rays=bullshit3.supplements=helpful…Continue

PUVA SESSIONS

Started by silvia bonilla. Last reply by silvia bonilla yesterday. 4 Replies

Is anyone against Puva? I do it recently, my mom is kind of concern from the side effects. Any experiences??? let me know thanksContinue

1 solution to avoid vitiligo genetically.

Started by Mahesh on Saturday. 0 Replies

Hi All,In case of female vitiligo, I think there is one solution to avoid vitiligo genetically.Not sure the following idea will really help or not, and may be no one tried it..But I think it can help…Continue

Tags: genetically, vitiligo, avoid

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

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