Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch.
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Groups
Good Links
Research:
Support:
Children:
International:
Resources:
Support:
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Weblap (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Photos
Videos
Latest Activity
Chrissy replied to Chrissy's discussion 'Protopic is an ointment...really??'
If I was to stick with Protopic....how long after having applied it can I rinse it off. I really don't feel like going to work with a shiny face.
gisela tundis replied to Ali Marie's discussion 'Depigmentation Information'
Hi Juan Carlos, and where did you get if from? When did you start with the process? Thanks in advance! Have a great day.
Tina replied to Tina's discussion 'Anyone use tinted moisterizer for white spots on the face?'
thanks so much Jessica! That is helpful, and yes I hate the paleness factor lol, but it IS easier than trying to darken up I think when you are already light to begin with. I didn't have luck with tinted anything or self-tanners…
nj replied to jimmy T's discussion 'I think I know how I got vitiligo.'
Has any1 tried having Wheatgrass juice (basically Chlorophyll) for Vitiligo ?
nj replied to jimmy T's discussion 'I think I know how I got vitiligo.'
Yes i also don't take much of citrus fruits or veggies.
One of my friend took Indian Gooseberry (Also known as Amla) juice for about a month and their vit spread like hell ... My vit din't spread that much in 10 yr time which i saw…
Azr Khatana replied to jimmy T's discussion 'I think I know how I got vitiligo.'
L-tyrosine increases the production of melanin it will not repigment vitiligo patches, however if used with combination with uvb then u will see faster repigmentation is sumit like scenesse.
Nadika replied to Chrissy's discussion 'Protopic is an ointment...really??'
Jessica !!! You can ask by the name TACROLIMUS Ointment !!!
Jessica replied to Tina's discussion 'Anyone use tinted moisterizer for white spots on the face?'
This may not be helpful, but since i cannot find foundations that cover up well on my above eyes/ and eye lids (i only have vit on the top though) Instead i just try to blend it in the best i can and use a lighter pale/white/light brown eye shadows.…
Jessica replied to Chrissy's discussion 'Protopic is an ointment...really??'
I am curious if anyone from Australia has used either Protopic or Elidel- my derm won't prescribe it ! Or are there any other brand names that it goes by?!
Christine Smith commented on Steve Hargadon's group 'Vitiligo Awareness'
Just a thought, June 25th how about those of us who are supporting someone with vitiligo but don't have it or have it but not visible - paint a white flower, heart, star, cross. - on our faces to a) show support b) have the.opportunity to…
Forum
Protopic is an ointment...really??
Started by Chrissy. Last reply by Chrissy 2 hours ago. 4 Replies 0 Likes
I feel foolish for not knowing this. I was surprised when I first aplpied it to my face yesterday. I hate ointments....I hate the greasy feeling, the shininess it leaves. I find it gross and the…Continue
Depigmentation Information
Started by Ali Marie. Last reply by gisela tundis 4 hours ago. 351 Replies 2 Likes
Since I have noticed a number of folks asking about depigmentation- method of treatment, effectiveness, cost, etc.- I thought I might start a thread about this, as I begin depigmentation this week…Continue
Anyone use tinted moisterizer for white spots on the face?
Started by Tina. Last reply by Tina 4 hours ago. 4 Replies 0 Likes
hello all, just wondering if anyone has tried this to "even" out the skin color more and what did you think of it? the worst white spots on my face are unfortunately, near and under my eyes, and I…Continue
I think I know how I got vitiligo.
Started by jimmy T. Last reply by nj 5 hours ago. 15 Replies 0 Likes
Eight years ago i went into Wal-mart pharmacy t asked the pharmacist it i don't want to get sick too oftern what type of vitamins should i take? she advised me to take vitamin C only to build a…Continue
I need a help............Please
Started by Ala D. Last reply by Juan Carlos Parra 17 hours ago. 13 Replies 0 Likes
Dear Brothers and sisters,Good day,I am Ala from Jordan and I am living now in Malaysia, I escaped from my hometown due to the bad traditions there. the man who has vitiligo will be undesirable and…Continue
Is there any direct link between the liver and vitiligo, or sugar and vitiligo?
Started by Ayla Gabrielle Quirk. Last reply by kalvin 21 hours ago. 1 Reply 0 Likes
Just through research, this comes up a lot about there being links between theses two, I would like to know other peoples opinions?Continue
How long did it take to see results on face repigment using Protopic?
Started by Tina. Last reply by Tina 23 hours ago. 6 Replies 0 Likes
and did the progress go away if/when the Protopic was discontinued? Also, is it safe to use this underneath and near the eye area? I ask because this is becoming my last hope, as the pigment…Continue
son having vit
Started by Rani Iyer. Last reply by Maharajan yesterday. 4 Replies 0 Likes
which treatment to follow for a 8 year old child.I am very concerned abt him...Continue
Home Phototherapy Unit
Started by Frank Schwartz. Last reply by Christie yesterday. 3 Replies 0 Likes
I am thinking of purchasing a Home Phototherapy Unit. Does anyone here have one and can you tell me if you had any luck with insurance paying for it and how well it has worked. Continue
Experience with oil Vitiligo Organics from Australia?
Started by Luna. Last reply by Luna yesterday. 12 Replies 0 Likes
Hello,I am a new member and the first question is:Are there any cured of vitiligo?I intend to buy oil vitiligo Organix from Australia at a cost $ 89 for 125 ml.Does anyone have experience with…Continue
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