Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

kim joined Liono lion's group
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Lets talks on Skype

I have created this group so that we all can talk on skype and get to know each other here we can talk on Skype, we can do video calls etc.For starter my Skype ID is Whitelion965@rocketmail.comwhats yours? Hope to talk to you people soon coz it…See More
3 hours ago
Jenny Wong posted a blog post

Do you know how does vitiligo cause?

The exact how does vitiligo cause are not yet known, but some experts think the disorder may be an autoimmune disease. They think vitiligo occurs when the immune system mistakenly attacks some part of your own body. In the attack, the immune system…See More
5 hours ago
Ainara Iturbe Zumeta replied to Erika P's discussion 'Just diagnosed and dreading the summer...'
"I think so. And with protective cream I thinkg you won't have any probelm. I love beach too :-) I avoid go there betweeen 12 pm 4 pm, I put protective cream all over my body and I walk along the shore and I take sun. Regards"
6 hours ago
FLAVIO commented on Laoise's status
"I understand your frustration, since there is no pill or cream that cures vitiligo itself. All the people who got cured,  they found the cure themselves.  What makes it hard, but feasible. Hope is the main thing.  Knowledge comes…"
7 hours ago
FLAVIO commented on annemarie hart's status
"So true. Find a good sunscreen with zinc."
7 hours ago
FLAVIO commented on Laoise's status
"Doctors don't have any clue on how to treat vitiligo.  What they learned at school is not updated anymore. Friend's suggestions might be very helpful. Sorry for being strait forward... A good strategy would be: Search for a good…"
7 hours ago
FLAVIO replied to Erika P's discussion 'Just diagnosed and dreading the summer...'
"Sun bath is good, but until 9AM and after 4PM. Check www.vitiligomap.com for suggestions. Regards."
7 hours ago
kim liked Ale Gonzalez's discussion MSG mono sosium glucamate
10 hours ago
kim liked Ale Gonzalez's discussion MSG mono sosium glucamate
10 hours ago
Erika P posted a discussion

Just diagnosed and dreading the summer...

I am so happy to have found this website so I do not feel so alone in this. I just got diagnosed a few weeks ago as I began to see the spots spread on my hands and hips.....just noticed a few white eyelashes the other day (hoping maybe they are…See More
11 hours ago
annemarie hart joined Patricia Stegall's group
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Creative & grateful people who happen to have vitiligo

I wanted to start a group for those who want to share their talent, creativity, optimism and gratitude.  I spent 50+ years of depression due to my vitiligo.  Now I want to share and hear about your gifts and talents.See More
16 hours ago
annemarie hart posted a status
"Dreading summer coming back to feeling self conscious so wish I could just enjoy summer without worrying :-("
16 hours ago

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Just diagnosed and dreading the summer...

Started by Erika P. Last reply by Ainara Iturbe Zumeta 6 hours ago. 2 Replies

I am so happy to have found this website so I do not feel so alone in this. I just got diagnosed a few weeks ago as I began to see the spots spread on my hands and hips.....just noticed a few white…Continue

Coconut Oil and Vitiligo

Started by Livingstone. Last reply by FLAVIO 19 hours ago. 32 Replies

Does anyone have any experience with using coconut oil in treating vitiligo?  I'm interested in hearing your thoughts and experiences.Continue

segmental vs general vitiligo?

Started by Beth. Last reply by FLAVIO 21 hours ago. 1 Reply

How do you know which type you have?  My son developed a white eyelash on his left eye about 3 months ago.  Now, he has about 6 or 7 - all on his left eye.  He also has a few white hairs on his head,…Continue

Just diagnosed

Started by Laoise. Last reply by FLAVIO 22 hours ago. 7 Replies

Hi everyone,First I just want to say how happy u am to have found this support group because there i cannot find support here in Ireland.I was diagnosed with vitiligo 4 weeks ago. I went to…Continue

Will Vitiligo affect both my children?

Started by Eden Denham. Last reply by FLAVIO yesterday. 7 Replies

Hi there. My daughter has recently been diagnosed with vitiligo at age 8. I've just had a baby and wondered if it's possible for him to develop the condition also?I don't have vitiligo and would like…Continue

The Natural Vitiligo System

Started by Eden Denham. Last reply by anitha yesterday. 2 Replies

Just wondering if anyone has heard of the Natural Vitiligo System eBook? Is it any good or just another money making scheme?

NB UVB and protopic on genital area

Started by Luis. Last reply by Joyce OB on Tuesday. 53 Replies

Dear all, I'm new on the forum. 34 year old with vitilgo since I was 10. After protopic during some years I only have vit on penis and perianal zone. I visit my derm and he recommended to me NB UVB +…Continue

The Dead Sea Treatment and Dr.Schallreuter

Started by Maria Seager. Last reply by FLAVIO on Tuesday. 52 Replies

Hi guys. I've been searching near and far since my vitiligo is starting to spread more then ever. Guess I'm looking to put out the inevitable fire if you will. I've read up a lot on this doctor and…Continue

Tags: #PCAT, #DeadSeaTreatment

coping with son's diagnosis

Started by Beth. Last reply by Beth on Monday. 7 Replies

Hi -     I'm new here - as my son was recently diagnosed. I'd love to hear from others - especially parents, on how to cope with this.  I'm just so upset - I keep thinking about my sweet little guy…Continue

"can normal indian boy love or marry a gal suffring from vitiligo?"

Started by kinjal sahu. Last reply by sukrutha on Saturday. 52 Replies

 "a normal boy LOVE or MARRY a gal suffering from vitiligo !?!''Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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