Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

Ainara Iturbe Zumeta updated their profile
33 minutes ago
Richard Spritz, MD posted a discussion

Vitiligo Genetics Research Study; sponsored by NIH

To all,I do not come onto this forum often. Some of you may know that my research team at the University of Colorado has been researching the genetic basis of vitiligo for almost 20 years, and we have made outstanding progress. Our findings have…See More
1 hour ago
Piyush liked Michael Spruill's group Vitiligo Singles
4 hours ago
Lourdes dieppa posted a status
"Hello all VF hola a todos"
12 hours ago
FLAVIO CORAGEM replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"Tom, according to Dr. Matteo Bordignon, an Italian researcher, the "inflammatory vitiligo"  is an inflammation that causes vitiligo (not the opposite).  There is no immune system battle against melanocytes.  So,  maybe…"
13 hours ago
FLAVIO CORAGEM replied to FLAVIO CORAGEM's discussion 'Dead Sea Treatment by yourself (no need to see Dr. Shallreuter)'
"I'm working on this.  See www.vitiligomap.com.  Anyway, thanks for the suggestion.  "
13 hours ago
Joyce OB replied to FLAVIO CORAGEM's discussion 'Dead Sea Treatment by yourself (no need to see Dr. Shallreuter)'
"Hi Flavio, thank you for such clear instructions.Thank you for all your information, you might try to put all your posts to one website with questions and answers so for us to easy to get the info. For instance, you have posted some info I like to…"
14 hours ago
Melissa updated their profile
16 hours ago
Justin Lopez liked April Mitchell's photo
21 hours ago
FLAVIO CORAGEM replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"Yes you can.  That's the best thing to do.  Do the phototherapy sessions, before bed,  2-3 times a week at most.   Protopic can be passed after the phototherapy, never before it. Ask for help to set up the exposure time.…"
yesterday
Profile IconDawn, TomT, Amanda and 2 more joined Vitiligo Friends
yesterday
Tom White replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"It's difficult of course for anyone to predict whether the UVB lamp alone will help you. I bought the lamp in advance, and I had some minor improvements in some areas with it, but nothing major. It depends on your vitiligo. I found that…"
yesterday

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Forum

Vitiligo Genetics Research Study; sponsored by NIH

Started by Richard Spritz, MD 1 hour ago. 0 Replies

To all,I do not come onto this forum often. Some of you may know that my research team at the University of Colorado has been researching the genetic basis of vitiligo for almost 20 years, and we…Continue

The Dead Sea Treatment and Dr.Schallreuter

Started by Maria Seager. Last reply by FLAVIO CORAGEM 13 hours ago. 46 Replies

Hi guys. I've been searching near and far since my vitiligo is starting to spread more then ever. Guess I'm looking to put out the inevitable fire if you will. I've read up a lot on this doctor and…Continue

Tags: #PCAT, #DeadSeaTreatment

Dead Sea Treatment by yourself (no need to see Dr. Shallreuter)

Started by FLAVIO CORAGEM. Last reply by FLAVIO CORAGEM 13 hours ago. 2 Replies

Hi All,  I had posted that in another discussion, but I realized later this topic should be more emphasized.  That's why I decided to upgrade that to a new specific discussion.I created this post,…Continue

vitiligo around my eyes

Started by mimi. Last reply by Pat M. yesterday. 10 Replies

Hi everybodyI am asking anyone who can help me to hide my white patches near and around my eyes.I have tried the make up but find it difficult to use in some patches where the skin is very smooth and…Continue

Interview with Dr. Caroline Le Poole on Vitiligo Reversal in Mice

Started by Steve Hargadon. Last reply by Keigan Williams on Thursday. 27 Replies

Today I recorded a phone interview with Dr. Le Pool on her research that was just published in Science Translation Medicine.  As you can see from the following articles, this is considered a very…Continue

Where to get the depigmentation Monobenzone - outside the US

Started by amr assaf. Last reply by amr assaf on Tuesday. 3 Replies

i am thinking about going through depigmentation process since am like 80 percent viti, first i i have go see my dermatologist ( its been like ten years since my last visit )the thing is Ive been…Continue

Behavior Guidelines in Our Vitiligo Friends Network

Started by Steve Hargadon. Last reply by amr assaf on Tuesday. 1 Reply

Dear Friends:Running a network like ours is a balancing act.  There are many who try and gain entrance to the network for the purposes of spamming. Every day I go through the process of looking at…Continue

Taking pregwise pills seems to be bringing my colour back

Started by Gaone Petronella on Tuesday. 0 Replies

HI everyone, I am currently pregnant and taking pregwise pills and I have noticed that my natural colour is reappearing  on the hands and nose but like dot dots.  So now I am thinking that maybe I…Continue

origin of your disease

Started by teh ben. Last reply by FLAVIO CORAGEM on Tuesday. 20 Replies

Hi everyone, I'm almost positive vitligo comes from emotional trauma along with environmental causes.I would like it if you all shared your experience in life right before you discovered your first…Continue

pigment appearing in white patches, no treatment being used

Started by Annette bezzina . Last reply by Annette bezzina on Tuesday. 5 Replies

Hi, I joined this group as my baby girl who is 5 months old  has been diagnosed with vitilgo. White patches appeared on her legs but then started to develop pigment again. Does anyone have experience…Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

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