Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

Justin Lopez liked April Mitchell's photo
5 hours ago
FLAVIO CORAGEM replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"Yes you can.  That's the best thing to do.  Do the phototherapy sessions, before bed,  2-3 times a week at most.   Protopic can be passed after the phototherapy, never before it. Ask for help to set up the exposure time.…"
8 hours ago
Profile IconDawn, TomT, Amanda and 2 more joined Vitiligo Friends
9 hours ago
Tom White replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"It's difficult of course for anyone to predict whether the UVB lamp alone will help you. I bought the lamp in advance, and I had some minor improvements in some areas with it, but nothing major. It depends on your vitiligo. I found that…"
9 hours ago
silvia bonilla replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"i see, I will do it like that then. In the meanwhile should i buy the UVB lamp and use it only like that until i have the cream. What i use now is only Protopic in the mornings and in the evenings, Thanks for your help"
9 hours ago
Jack Zhang posted a status
"Learning English to communicate vitiligo with the friends"
17 hours ago
FLAVIO CORAGEM posted a discussion

Dead Sea Treatment by yourself (no need to see Dr. Shallreuter)

Hi All,  I had posted that in another discussion, but I realized later this topic should be more emphasized.  That's why I decided to upgrade that to a new specific discussion.I created this post, because despite it's so difficult to set up an…See More
23 hours ago
Nice Guy posted a status
"Happy Deepawali to all"
23 hours ago
FLAVIO CORAGEM replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"If you are taking the pills, just take a picture of the label and email me (fcoragem@gmail.com). I've seen that before.  It mentions (in German)  L-Methionine,  Alpha-Lipoic Acid, L-Cysteine and Ascorbic Acid. I just…"
23 hours ago
FLAVIO CORAGEM replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"Good point.  Hydrogen peroxide (H2O2) is the effect of oxidative stress.  The cream helps the effect.  To address the cause,  you will have to reduce oxidative stress with diet, nutrition and supplements.  Also check gut,…"
yesterday
FLAVIO CORAGEM replied to Maria Seager's discussion 'The Dead Sea Treatment and Dr.Schallreuter'
"Not the cream.  The cream is totally known.   I'm talking about the pills.  Aren't you taking anti-oxidant pills?"
yesterday
Pat M. replied to mimi's discussion 'vitiligo around my eyes'
"Dermablend definitely."
yesterday

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Members

Forum

The Dead Sea Treatment and Dr.Schallreuter

Started by Maria Seager. Last reply by FLAVIO CORAGEM 8 hours ago. 45 Replies

Hi guys. I've been searching near and far since my vitiligo is starting to spread more then ever. Guess I'm looking to put out the inevitable fire if you will. I've read up a lot on this doctor and…Continue

Tags: #PCAT, #DeadSeaTreatment

Dead Sea Treatment by yourself (no need to see Dr. Shallreuter)

Started by FLAVIO CORAGEM 23 hours ago. 0 Replies

Hi All,  I had posted that in another discussion, but I realized later this topic should be more emphasized.  That's why I decided to upgrade that to a new specific discussion.I created this post,…Continue

vitiligo around my eyes

Started by mimi. Last reply by Pat M. yesterday. 10 Replies

Hi everybodyI am asking anyone who can help me to hide my white patches near and around my eyes.I have tried the make up but find it difficult to use in some patches where the skin is very smooth and…Continue

Interview with Dr. Caroline Le Poole on Vitiligo Reversal in Mice

Started by Steve Hargadon. Last reply by Keigan Williams yesterday. 27 Replies

Today I recorded a phone interview with Dr. Le Pool on her research that was just published in Science Translation Medicine.  As you can see from the following articles, this is considered a very…Continue

Where to get the depigmentation Monobenzone - outside the US

Started by amr assaf. Last reply by amr assaf on Tuesday. 3 Replies

i am thinking about going through depigmentation process since am like 80 percent viti, first i i have go see my dermatologist ( its been like ten years since my last visit )the thing is Ive been…Continue

Behavior Guidelines in Our Vitiligo Friends Network

Started by Steve Hargadon. Last reply by amr assaf on Tuesday. 1 Reply

Dear Friends:Running a network like ours is a balancing act.  There are many who try and gain entrance to the network for the purposes of spamming. Every day I go through the process of looking at…Continue

Taking pregwise pills seems to be bringing my colour back

Started by Gaone Petronella on Tuesday. 0 Replies

HI everyone, I am currently pregnant and taking pregwise pills and I have noticed that my natural colour is reappearing  on the hands and nose but like dot dots.  So now I am thinking that maybe I…Continue

origin of your disease

Started by teh ben. Last reply by FLAVIO CORAGEM on Tuesday. 20 Replies

Hi everyone, I'm almost positive vitligo comes from emotional trauma along with environmental causes.I would like it if you all shared your experience in life right before you discovered your first…Continue

pigment appearing in white patches, no treatment being used

Started by Annette bezzina . Last reply by Annette bezzina on Tuesday. 5 Replies

Hi, I joined this group as my baby girl who is 5 months old  has been diagnosed with vitilgo. White patches appeared on her legs but then started to develop pigment again. Does anyone have experience…Continue

Understanding the cruel Koebner effect in non-segmental vitiligo

Started by FLAVIO CORAGEM. Last reply by FLAVIO CORAGEM on Tuesday. 4 Replies

Hi All,I would like to share with you my understanding about non-segmental vitiligo development.In my opinion, the sequence is like this:1)Genetic pre-disposition (PRIMARY cause) => Can or can not…Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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