Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

sukrutha replied to Mosh's discussion 'Cure for Vitiligo Patients Finally'
"nope..Ajay.. my vit is dormant now..I am not using any internal medicine but I am relying on UVB"
15 minutes ago
abeer mhmd liked Mosh's discussion Cure for Vitiligo Patients Finally
1 hour ago
Shefin Plazid commented on Anil's group 'UK Meet-Up Group'
"Hi Anil 14th may only I reach London.. I'll ask my Company if I get leave on 23rd.. If I get leave I'll definitely come and I'll give you my number when I reach London"
5 hours ago
Vicente joined valarie's group
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VITFriends, LLC

A vitiligo support group serving individuals with vitiligo, their friends and family in the North East USA. (CT, MA, ME, NH, NY, RI and VT)
5 hours ago
Anil liked Kimberly's photo
13 hours ago
Anil commented on Anil's group 'UK Meet-Up Group'
"Hi guys. Thanks to everyone who has joined. We need to get a date confirmed for the meetup as people including me are putting other plans on hold until we can arrange this. So the plan as it stands is: Saturday 23rd May, Central London. Anyone who…"
13 hours ago
MARIA ELENA GONZALEZ replied to MARIA ELENA GONZALEZ's discussion 'New Medication'
"I sure will, I will find out more next week."
17 hours ago
rebeca replied to MARIA ELENA GONZALEZ's discussion 'New Medication'
"Thank you so much for your information. she is using protopic and elomet now. Everyone talking about pseudo cream in this group and in my place they dont have such things.once again thanks..please update me if you find anything. Thank you"
yesterday
MARIA ELENA GONZALEZ replied to MARIA ELENA GONZALEZ's discussion 'New Medication'
"Hi Rebeca, I havent gotten the medication as yet. In one of the visits for her treatment he mention there was a new medication and told me I should try it for my daughter. Since We are not going to her treatment until next week I called the service…"
yesterday
FLAVIO replied to Mosh's discussion 'Cure for Vitiligo Patients Finally'
"There is no miracle. No cure yet. In my opinion, the best you can do is to follow a Functional Treatment. Check: www.vitiligomap.com/protocol.html"
yesterday
Profile IconYousef, KesavanVasudev, Jen Petz and 17 more joined Vitiligo Friends
yesterday
Ajay updated their profile
yesterday

Events

 

Members

Forum

Cure for Vitiligo Patients Finally

Started by Mosh. Last reply by sukrutha 15 minutes ago. 101 Replies

Good News for Vitilego Patients Hi, All, Hope you guys doing well, My name is Mosh, and I have vitilego since years.. maybe more than 14 years. i was worried about my skin a lot, and came here on…Continue

New Medication

Started by MARIA ELENA GONZALEZ. Last reply by MARIA ELENA GONZALEZ 17 hours ago. 7 Replies

HI All,My daughter suffers from Vitiligo since she is 5, now she is 14 and she has repigmented a little with UVB  treatments at the Dermatologist office. Recently He prescribed a new medication which…Continue

People with vitiligo in California

Started by Saachi on Friday. 0 Replies

If there's anyone in the San Francisco area with vitiligo, do message me.Or if you're near Modesto-thanksContinue

Lip vitiligo.

Started by Sandeep. Last reply by Saachi on Friday. 2 Replies

Hi all,I have white spots on my lower lip from almost @5years and its not spreading(thats a relief) i have used so many medicines but none worked. now i am using lukoskin & bakuchi oil. Is there…Continue

Naturist helped me a lot

Started by ERIKA. Last reply by Maharajan on Thursday. 1 Reply

Hello guys, let me tell you that a couple years ago I went to a Naturist in Chicago and she did some type of physical exam and by looking into my eyes, hands and tongue she "knew" my condition this…Continue

Ah crap

Started by Chrissy. Last reply by Saachi on Thursday. 7 Replies

It came back.  On my face...my chin...and around my lip.  It had 99% repigmentation of my face by using elidel in the morning and protopic at night.  The derm specialised in vitiligo that I saw could…Continue

HELP (excimer laser treatment trouble)

Started by Saachi. Last reply by Saachi on Thursday. 4 Replies

I started doing the excimer treatment on March 31. I go about twice a week every week. I know that it is radiation which is likely to cause fatigue, and I have been extremely tired. I would fall…Continue

Vitiligo Fading

Started by Nancy koepper. Last reply by Nancy koepper on Wednesday. 4 Replies

Hello from Northern California. My vitiligo is fading on my back. I am thankful! Has anyone experienced fading? I totally changed my diet, cut out all sugar, soda, coffee, and caffinated tea. I try…Continue

Autoimmune Protocol for Vitiligo

Started by Maria Seager. Last reply by Maria Seager on Wednesday. 4 Replies

I've started a very strict, nutrient dense diet called AIP. I started it in December of last year along with a fantastic diagnosis of rheumatoid arthritis. (yuck) From what I have read Vitiligo and…Continue

Coconut Oil and Vitiligo

Started by Livingstone. Last reply by Erin Elizabeth on Wednesday. 34 Replies

Does anyone have any experience with using coconut oil in treating vitiligo?  I'm interested in hearing your thoughts and experiences.Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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