Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

Chrissy replied to Mosaic B's discussion 'Another "so-called" Vitiligo cure...For some reason, I believe in this one'
"It is on the market, from what I understand.  It is used for RA.    RA is an autoimmune disease and meds are used to keep an overactive immune system from attacking itself.  The same with vitiligo which is also an autoimmune…"
4 hours ago
Mosaic B posted a blog post
4 hours ago
Mosaic B updated their profile
4 hours ago
Sara replied to Sara's discussion 'Starting a new treatment Today'
"Thank you very much :)"
5 hours ago
Mosaic B replied to Mosaic B's discussion 'Another "so-called" Vitiligo cure...For some reason, I believe in this one'
"Agreed Silvia.  We should all keep praying."
6 hours ago
silvia bonilla replied to Mosaic B's discussion 'It's my anniversary...8 years and counting with Vitiligo'
"yes my dear, God will help us. We  have to believe the cure will arrive sooner or later:)"
6 hours ago
Mosaic B replied to Mosaic B's discussion 'Another "so-called" Vitiligo cure...For some reason, I believe in this one'
"Hi Chrissy, please keep us updated on what your doctor reports.  I would think that most doctors are not even aware of this yet, but it is good for those of us in the Vitiligo community to keep pushing the information main-stream."
6 hours ago
silvia bonilla posted a photo
6 hours ago
Mosaic B posted discussions
6 hours ago
silvia bonilla replied to Mosaic B's discussion 'Another "so-called" Vitiligo cure...For some reason, I believe in this one'
"Thanks a lot, I wonder when is it going to be approved and ready for the market? I wonder too if it will work for everybody, I will prayed hard that this can help us all."
6 hours ago
Chrissy replied to sarah cooper's discussion 'DNA test reveals vitiligo mutations. Anyone have done this test?'
"I'm not sure I understand what you mean by uploading raw data. please explain. I would have thought vitiligo would appear in 23andme analysis.  "
6 hours ago
Chrissy replied to Mosaic B's discussion 'Another "so-called" Vitiligo cure...For some reason, I believe in this one'
"Interesting...especially since I do have RA! I will talk to my doc about this."
7 hours ago

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Another "so-called" Vitiligo cure...For some reason, I believe in this one

Started by Mosaic B. Last reply by Chrissy 4 hours ago. 7 Replies

I don't normally get my hopes because I read about many "so-called" cure drugs each month.  However, this one from Time caught my attention. Restoring pigment with no side-effects sounds too good to…Continue

Starting a new treatment Today

Started by Sara. Last reply by Sara 5 hours ago. 2 Replies

Hello everyone, Today I begin a new treatment that I tried a long time ago but I let down because i was busy preparing my Master degree. This is an herbal and honey based treatment prepared by an…Continue

It's my anniversary...8 years and counting with Vitiligo

Started by Mosaic B. Last reply by silvia bonilla 6 hours ago. 1 Reply

I am celebrating, although I must admit that it is a bitter-sweet celebration.  July marks eight years since I detected that first spot on my left ring finger that turned out to be Vitiligo. I have…Continue

Tips for a vitiligo sufferer heading down south

Started by Chrissy 7 hours ago. 0 Replies

Hi all,I will be going to Cuba in a couple weeks - a last minute trip.  The last time I went down south was a few years ago and it was the first time I noticed the white patches on my face.  It…Continue

Hi!

Started by Drew Temple-Mabe. Last reply by Mosaic B 7 hours ago. 1 Reply

Hi - my name's Drew and I live in London. I was diagnosed with vitiligo about 3 and a bit years ago - I don't know anyone else with it so wanted to reach out and make some connections :) Looking…Continue

is a vegetarian diet bad for vitiligo?

Started by silvia bonilla. Last reply by silvia bonilla 8 hours ago. 3 Replies

I am really confused after i read a blog from someone that has vitiligo and said that a vegetarian diet is not so good for our condition; then she puts a link over a Dr Wilson treatment and there…Continue

Different types of Pseudocatalase Cream

Started by FLAVIO. Last reply by FLAVIO 8 hours ago. 4 Replies

Hi All,There are 3 types of pseudocatalase cream in the market.  They are:1-PC-KUS (German one.  Found only in the German Clinic)Specific differences: uses Neribas (neribase) as a base cream that…Continue

how many times and best hour to put protopic for the face?

Started by silvia bonilla 13 hours ago. 0 Replies

Hi everybody,I would like to apply protopic on my white spots again but i dont remember the daily dosis for the face ?Thanks a lot Continue

Tofacitinib and Vitiligo case study.

Started by Charlie. Last reply by FLAVIO 21 hours ago. 23 Replies

After seeing the link to the telegraph article on these very forums, I decided to follow the google trail and came across the case study for anyone interested.Published in JAMA Dermatology - Yale…Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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