"yes you are rigth egnore them. for me i avoid people who saying me negative...
Im new here i hoe we can be friends also
"
Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch.
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Groups
Good Links
Research:
Support:
Children:
International:
Resources:
Support:
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Weblap (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Photos
Latest Activity
Kris_p replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"Thats great... thank you Erica i try also the cream you have said.. i tell you also what if change on me.Did you take folic acid and vitamin d?Thanks for the information...I am new here
I fell how you feel also....for now i dint…"
Erica Heber replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"Amanda, yes, the Protopic is the only thing that can be used on the face. The steroid cream cannot be used on the face. Thank god I dont have the spots on my face...it was spared so far!! But I have a giant tube of Protopic on hand…"
Holly Lambrechts replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"Thank you for the info.
Yea,I wish I could say,"The hell with it all" like some, but I live in South Florida and it is so hot in summer that I can not envision wearing long sleeves,turtlenecks,and long pants.I also want to at least…"
Amanda Flynn replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"That is so great! I am so happy when I hear these stories. Protopic only works on my face so when I get insurance I will have to mention this to my derm."
Erica Heber replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"Bamesegutt - yes, my dermatologist told me all the warnings but he knows how emotionally difficult this is for me so he realizes that the good outweighs the bad. I am going to use it until I achieve full repigmentation and then will only use…"
Erica Heber replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"Debasmita - sure! Here are all the details of my cream:
Name: Desoximetasone
Manufacturer: Taro Pharmaceuticals
Type: Cream 0.25%
I hope this helps! Let us know if you start using it too. Take care!"
Merry replied to Hana Teferi's discussion 'MELANOCYITE TRANSFUR'"Hi hanna i was one his candidate but unluckly my vit is not stable. To do the treatment our vit should be stable that is why i couldnt perform the treatment . Regards"
Bamsegutt replied to kalvin's discussion 'Th17, Tregs, and Th1 cells'"It is interesting that you brough about Th17 thory, there are a groupp of sientistis in Japan reaserching for many years about the link between Kertatinocyte PSTAT3 and Th17 cell infiltration in Vitiligo skin.It has been dicussed in Milano…"
Bamsegutt replied to Hana Teferi's discussion 'MELANOCYITE TRANSFUR'"Hello Hana
I havn`t done it coz my vit was not stable hope to hear others exprience too , I am planning to try it this sommer I will let you know the result.
Bamsegutt
"
Bamsegutt replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"Hello Erica you are lucky that it helps for you and you find a derm willing to try..most doctors they dont because of long term use side evffects like skin thinning .
As long as it helps to repigment and ur derm follows and you use it for a short…"
debasmita sahoo replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"hello Erica. thanks for the information. few years ago i also had applied a steroid cream on my white patches. it worked verywell. but the pharmacy stopped manufacturing that ointment. i felt so helpless. i think i should try ur steroid cream. could…"
Forum
A random thought
Started by Antuana. Last reply by Kris_p 1 hour ago. 9 Replies 3 Likes
This is a random thought I had the other day. I was thinking about my vit and I came to the conclusion that even if we dont realize it that we are very confident people. It takes confidence to live…Continue
Steroid Cream is working!!!!!!!
Started by Erica Heber. Last reply by Kris_p 2 hours ago. 12 Replies 1 Like
Hello all! I just wanted to post that my steroid cream, Desoximetasone, is definitely working. It has been 1 month since I started applying it every day and the freckling is really starting up! My…Continue
MELANOCYITE TRANSFUR
Started by Hana Teferi. Last reply by Merry 10 hours ago. 2 Replies 0 Likes
Some time ago there were some vitis from this group who has got free offer by dr .Vivik we haven`t heard the result Is there any one who has appdates or any other exprience. This webcite is claiming…Continue
Th17, Tregs, and Th1 cells
Started by kalvin. Last reply by Bamsegutt 14 hours ago. 1 Reply 0 Likes
I thought Th17 is inducing autoimmunity but on the other hand Th17 produce IL-10, IL-22 cytokines which inhibits autoimmune disease, and Tregs induce Th17 by producing TGF beta, while Tregs inhibit…Continue
MY ARTICLE ABOUT VITILIGO AWARENESS FINALLY GOT PUBLISHED. CHECK IT OUT!
Started by Naomi. Last reply by Naomi yesterday. 9 Replies 1 Like
Hello Amazing People!I just want to start out by saying I want to thank everyone that connected with me and helped me out with this article. I want to thank everyone that opened up to me and told me…Continue
Slowing down your immune system
Started by Lucy. Last reply by Lucy on Wednesday. 8 Replies 0 Likes
GM group. I hope everyone is well. We all know vitiligo is linked to autoimmune disease/disorder. We have an overactive immune system and it is attacking our own body. Those of you that are receiving…Continue
Exposure to toxins
Started by Amy. Last reply by DONNA CONLEY on Tuesday. 7 Replies 0 Likes
Was anyone exposed to toxins prior to getting vitiligo? Examples such as fertilizer on farms, lice removal lotions, hair dyes or even very harsh cleaning products. It could be prolonged use, or…Continue
Depigmentation - Is it right for me?
Started by Evangeline. Last reply by Evangeline on Monday. 3 Replies 0 Likes
Considering the genetic nature of my vitiligo, I am considering depigmentation, instead of repigmentation treatments. Any ideas/opinions/advice on this?" My vitiligo is widespread, and I've had it…Continue
?
Started by Abdel El. Last reply by Alaa Aroosi on Monday. 1 Reply 0 Likes
you guys are still taking it so seriously ! I covered all the patches on my face, and guess what? I didn't feel okay , actually I might have hated myself for how I looked likeContinue
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