Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

Frank Harrison posted a status
"Flavio What is the best way to treat from inside? I am a new member."
12 seconds ago
FLAVIO commented on Frank Harrison's status
"Sounds good. Since it's an outside treatment only,  It might be a waste of money if you don't treat from inside too (at the same time). Excimer laser is the best technology regarding UVB-NB, and it's highly recommended that you…"
11 minutes ago
Mark Johnson commented on devon's status
"So your not in nola anymore?"
13 minutes ago
Frank Harrison posted a status
"I am considering Pharos excimer laser. Does anyone have any suggestions?"
28 minutes ago
Kunal Kapadia updated their profile
47 minutes ago
devon posted photos
1 hour ago
devon posted a status
"I book marked this page so i'll prrolly be on here more :)"
1 hour ago
devon posted a status
"I couldn't... but now i understand... I'm still mainly an introvert... but im happier... always working hard never hardly working"
1 hour ago
devon posted a status
"Sorry i've been gone for so long... Tbh all the positive feedback got to me... I didnt understand how everone could enjoy life so much while"
1 hour ago
devon updated their profile
1 hour ago
devon posted a status
"It's been a long while huh. I'm still working a lot.i wanna go back to school and things.have a girlfriend now. and i moved away from home."
1 hour ago
Crystal Jones posted an album
3 hours ago

Events

 

Members

Forum

Tofacitinib and Vitiligo case study.

Started by Charlie. Last reply by FLAVIO 13 hours ago. 21 Replies

After seeing the link to the telegraph article on these very forums, I decided to follow the google trail and came across the case study for anyone interested.Published in JAMA Dermatology - Yale…Continue

Pseudolatalase Cream

Started by Christina Fraijo. Last reply by FLAVIO 18 hours ago. 9 Replies

I am thinking about trying pseudocatalase cream. If any of you have tried it please let me know if it worked for you. I am currently using uv treatment  and it is working but I want to try something…Continue

Personal Thoughts about Functional Treatment

Started by FLAVIO. Last reply by FLAVIO yesterday. 14 Replies

Friends,I'm convinced that the only way to counter attack vitiligo is following a Functional Treatment (FT).  I haven't seen a case yet that a FT didn't improve vitiligo.  Stop spreading is the main…Continue

New study of SCENESSE (afamelanotide 16mg) implant in vitiligo - Singapore

Started by Lachlan Hay. Last reply by Lachlan Hay yesterday. 21 Replies

Hi everyone,I've previously posted on Clinuvel's clinical study program, evaluating the safety and efficacy of our drug SCENESSE (afamelanotide 16mg) in generalised vitiligo. The company has just…Continue

Chemicals to avoid

Started by Andrea. Last reply by FLAVIO yesterday. 1 Reply

Good evening!I have done some internet searching on what to avoid when you have vitiligo. I can't seem to get a clear answer and i'm not sure what is true and what is not. I've heard that I should…Continue

Some vitiligo scenarios

Started by FLAVIO. Last reply by Munir yesterday. 18 Replies

Hi Friends,I have reasons to believe that vitiligo patches are caused by a protein called MIA that detaches melanocytes.  As a matter of fact, that's Dr. Matteo's theory that I agree 100% (…Continue

uvb

Started by rebeca. Last reply by Jaime A. Guevara on Thursday. 12 Replies

"my daughter(11) is going to start uvb treatment in national skin center any opinion? does really help? please reply"Continue

Relationships

Started by Bijal. Last reply by ammu on Tuesday. 12 Replies

Hi guys, I was wondering how you all have got on with your relationships. How easy/difficult has it been to find a partner and what has their reaction been to your vitiligo?Should people with…Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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