Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

Joel Kawira updated their profile
26 minutes ago
Mahesh replied to Mahesh's discussion 'Vitiligo Cure and time?'
"Haha :) correct"
1 hour ago
FLAVIO CORAGEM replied to Mahesh's discussion 'Vitiligo Cure and time?'
"You're right. And we definitely need luck too, since hope and faith we have enough."
2 hours ago
Mahesh replied to Mahesh's discussion 'Vitiligo Cure and time?'
"Thank you so much FLAVIO You always give best and effective reply. I am happy with your reply and also happy to know that high cure may available in next 2 years.. But same time also pray that,  genetic cause vitiligo treatment should come…"
2 hours ago
FLAVIO CORAGEM replied to Mahesh's discussion 'Vitiligo Cure and time?'
"Regarding the creams,  remember that they work better if you follow a functional protocol.  To have an idea, please take a look at www.vitiligomap.com/protocol.html . "
3 hours ago
FLAVIO CORAGEM replied to Mahesh's discussion 'Vitiligo Cure and time?'
"Mahesh,  you make a difficult question, but I will try to express my point of view. 1- I believe that in 2 years some real cure will come up.  At least for non-segmental vitiligo, which is the most popular one.  Like any drug /…"
4 hours ago
FLAVIO CORAGEM commented on Tracey's photo
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"This thought  definitely helps * any * vitiligo treatment.    Great!"
4 hours ago
FLAVIO CORAGEM replied to Joe's discussion 'Have many other people experienced "physician apathy" in regard to vitiligo?'
"Doctors usually don't have a clue about this disease.  They don't have time to research it like we do. "
4 hours ago
Mahesh posted a discussion

Vitiligo Cure and time?

Hello :)Since long we are waiting vitiligo 100% cure, But can someone tell me...When we can expect the cure,  2 –years , 4-years, 6-years or ...….. ?How many researches going on?Which is the nearest hope?Can new Medicine/Cream helps in skin…See More
4 hours ago
Tracey updated their profile
6 hours ago
Tracey posted a photo
6 hours ago
mourad khouri updated their profile
6 hours ago

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Vitiligo Cure and time?

Started by Mahesh. Last reply by Mahesh 1 hour ago. 5 Replies

Hello :)Since long we are waiting vitiligo 100% cure, But can someone tell me...When we can expect the cure,  2 –years , 4-years, 6-years or ...….. ?How many researches going on?Which is the nearest…Continue

Have many other people experienced "physician apathy" in regard to vitiligo?

Started by Joe. Last reply by FLAVIO CORAGEM 4 hours ago. 6 Replies

Greetings all, near and far,   Anyone else experience a disturbing lack of interest of their v symptoms by their physicians? My first "diagnosis" was only when I highlighted my white patches to my…Continue

Need help in Calgary

Started by Mandeep Loomba 7 hours ago. 0 Replies

Hi,I am Mandeep from India, next week I am going to Edmonton/Calgary.As I have Vitiligo on my face and on hands.Is there any one who can help me out to get job there.please replyRegardsMandeepContinue

Homeopaths and Acupuncture

Started by Maria Seager. Last reply by Ainara Iturbe Zumeta 9 hours ago. 21 Replies

In my continued endeavor to cover all my basis as it concerns autoimmune disease, I had my initial appointment with a trusted homeopathic doctor and acupuncturist. We dove into many many questions as…Continue

Tags: #acupuncture, #homeopathy, #WesternVs.EasternMedicine

Ginkgo Biloba

Started by Simon Parker. Last reply by Ainara Iturbe Zumeta 10 hours ago. 1 Reply

Effective treatment for Vitiligo:http://www.bastyrcenter.org/content/view/414/Health concerns, cancer in rats and mice:…Continue

Evidences of role of physical traumas, friction, oxidative stress and MIA in non-segmental vitiligo

Started by FLAVIO CORAGEM. Last reply by FLAVIO CORAGEM 13 hours ago. 3 Replies

Hi Friends,I've just created this discussion to provide evidences (papers,  sources,  books, whatsoever) regarding the major role that physical traumas, friction, oxidative stress and MIA (melanoma…Continue

Talking to family and friends about vitiligo

Started by Tim. Last reply by Marcela Hernandz 18 hours ago. 23 Replies

Does anyone have suggestions on best practices for explaining to family and friends that you have vitiligo, what it is, and how to move forward with their support? Thanks!

Different Types of Vitiligo? Or Side Effects?

Started by Maria Seager. Last reply by FLAVIO CORAGEM 22 hours ago. 1 Reply

I've noticed a weird phenomenon. I started using Clobetasol about a week ago for inflammation of my skin. Now it seems that there's this odd bluish color on my skin where i used the medication small…Continue

Tags: #sideeffects, #clobetasol, #bluevitiligo

Vitiligo Genetics Research Study; sponsored by NIH

Started by Richard Spritz, MD. Last reply by FLAVIO CORAGEM yesterday. 7 Replies

To all,I do not come onto this forum often. Some of you may know that my research team at the University of Colorado has been researching the genetic basis of vitiligo for almost 20 years, and we…Continue

Vitiligo Genetic Studies--Participants Needed!

Started by Richard Spritz, MD. Last reply by Matteo Bordignon on Tuesday. 3 Replies

University of Colorado Vitiligo Genetics ProjectParticipants NeededMany of you are aware of our longstanding vitiligo genetics research project, and we thank the over 4000 of you who have already…Continue

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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