Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. We are now over 5,700 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

steph reynoso replied to Joyce OB's discussion 'Protopic 0.1%'
"Which herbal medicine? I'd love to try natural remedies with minimal negative side effects/exposure to radiation. Pink patches on the spot is always a good sign for me! After the redness heals, color pigmentation seems to reappear."
1 hour ago
Vinny replied to annemarie hart's discussion 'Red itchy raised lumps around vitiligo very itchy and red :-('
"GULP!"
1 hour ago
Joyce OB replied to Joyce OB's discussion 'Protopic 0.1%'
"Thank you Steph, for your information, I am currently trying herbal medicine for 3 weeks, not much improvement yet, al little pink on the patch. I am thinking I may also try protopic which my doc recommends."
1 hour ago
steph reynoso replied to steph reynoso's discussion 'Sun and Vit'
"Sun burns are the worse. When I was doing PUVA therapy, my spots would often burn and become irritated. Thanks for your response."
2 hours ago
steph reynoso replied to steph reynoso's discussion 'Sun and Vit'
"hm, that's interesting. perhaps its because the back of your neck gets a lot of sun with minor disruption unlike your hands?? Thanks for the feedback. The spot on my neck seems to darken and the one under my arm is being a bit stubborn also! :/"
2 hours ago
Samantha Phillips replied to steph reynoso's discussion 'Sun and Vit'
"When I am in the sun and my skin gets tanned, my vitiligo becomes more noticeable. Not sure how it is for others, but that is how it is for me. I have had this since I was 8 years old and am now 25, and have never had an experience of them getting…"
5 hours ago
Justin Lopez liked lizzy's photo
5 hours ago
Profile IconAndrea Cepale, denise andrew and Shirish K joined Vitiligo Friends
6 hours ago
Jodie posted a discussion

dating people with vitiligo

Hey I was just wondering if there are any sites out there for people who want to date people with vitiligo. Thanks :)
9 hours ago
Jodie posted a status
"Hey people :) x"
9 hours ago
florina liked MelanieLovemyskin's status
17 hours ago
florina liked steph reynoso's discussion Sun and Vit
17 hours ago

Events

 

Members

Forum

Protopic 0.1%

Started by Joyce OB. Last reply by steph reynoso 1 hour ago. 3 Replies

Has anybody tried protopic cream with a success? Today my doc asked me to use protopic 0.1% cream for my white patch on my forehead, he said his patients had good results, but his assistant suggested…Continue

Red itchy raised lumps around vitiligo very itchy and red :-(

Started by annemarie hart. Last reply by Vinny 1 hour ago. 12 Replies

Has anyone suffered with red raised itchy lumps around their vitiligo mine looks terrible it's on my hands and arms :-(

Sun and Vit

Started by steph reynoso. Last reply by steph reynoso 2 hours ago. 4 Replies

Hey guys,I've been in the sun A LOT lately. I often am but with my spots covered. Lately, however, I've had a more care-free spirit and wear tanks/bikinis. I thought my spots would get darker as my…Continue

Tags: #Sunlight, exposure, #sun

dating people with vitiligo

Started by Jodie 9 hours ago. 0 Replies

Hey I was just wondering if there are any sites out there for people who want to date people with vitiligo. Thanks :)

Plzzzz I need a suggestion.....

Started by Ro Land. Last reply by Bamsegutt 23 hours ago. 1 Reply

Continue

Sexual life with vitiligo

Started by Tadeáš Dvořák. Last reply by steph reynoso yesterday. 2 Replies

Hi.I would like to open up a theme which i haven´t seen anywhere. I´m 16 years old so i´m slowly sailing into the sexual life.I´m pretty sure that girl which loves you will doesn´t mind  vitiligo.But…Continue

Tags: vitiligo, taboo, sex, opinion, experiences

Using the Placebo Effect to Heal

Started by Omar Shahid. Last reply by Omar Shahid yesterday. 2 Replies

New research shows that taking a placebo can still have positive effects even if the person knows they're taking a placebo.#6 Works When You Know…Continue

Energy Healing: Quantum-Touch 2.0

Started by Omar Shahid. Last reply by anitha yesterday. 2 Replies

Has anyone looked into energy healing? There's this book I got, Quantum-Touch 2.0 The New Human. The author sums up one way of doing it on page 47:- Generate and feel intense loving sensation in your…Continue

I wish there is magic pill for Vitiligo....

Started by Ragini. Last reply by mritunjay joshi on Wednesday. 22 Replies

Hey kind of feeling sad...for any one knows UV therapy how safe it is?

Latest vit photos, repigmentaion

Started by JJ. Last reply by JJ on Wednesday. 2 Replies

After over thirty five years of progressing vit, finally something that is working for me- UVB photolight treatment. This is over a 5 month span. I'm hopefull now. I will be happy to just get 80%…Continue

Tags: vitiligo, repigmentation.

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    Send Your Photo to Our "Uniquely Beautiful" Site!

    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

    UniquelyBeautiful.net

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