Vitiligo Friends

Make Friends, Share Healing Ideas, Inspire Hope

Welcome!

Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 6,000 members!

Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!

To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.

So glad you are here!

--Steve

P.S. Commercial posts, including repeated endorsements of "cures," will be removed.

Latest Activity

Mike Salvo liked nathalie pelletier's video
1 hour ago
FLAVIO replied to Luis's discussion 'NB UVB and protopic on genital area'
"Pseudocatalase has no side effect.  It's worth atry. It can be together with protopic, but not at the same time. You can have pseudocatalase right before UVB sessions and protopic in the middle of the day."
2 hours ago
Profile Iconmanny velazquez, Tenshi, ajay singhal and 4 more joined Vitiligo Friends
2 hours ago
jimmy ford commented on nathalie pelletier's video
Thumbnail

Vitiligo Revealed: What You Need to Know About Vitiligo

"very inspiring video for me could not have come at a better time im going to try the neem oil"
5 hours ago
Ainara Iturbe Zumeta replied to Ainara Iturbe Zumeta's discussion 'New therapy for vitiligo?'
"Pefect, thanks :-) I will read it slowly because my english don't let me to  more. "
5 hours ago
The One updated their profile
5 hours ago
Luis replied to Luis's discussion 'NB UVB and protopic on genital area'
"Flavio, what I can expect for this cream on penis? You know... base is hairy but foreskin isn't... like any other man I think ;-)  Do you continue with protopic for 4 mouths (based that I used it on the past with no result) or try…"
5 hours ago
FLAVIO replied to Luis's discussion 'NB UVB and protopic on genital area'
"Yes.  A lot. It works well in hairy areas. Regarding non-hairy ones,  it works poorly (e.g. hands). "
8 hours ago
Patricia Stegall liked Mike Salvo's photo
9 hours ago
Luis replied to Luis's discussion 'NB UVB and protopic on genital area'
"Flavio, thanks again. I know that when I start to apply pseudocatalase I need to stop to apply protopic. But I found this study on internet...  http://bvsalud.org/portal/resource/pt/mdl-19523170 Flavio do you have experience with…"
9 hours ago
FLAVIO replied to Ainara Iturbe Zumeta's discussion 'New therapy for vitiligo?'
"Thanks.  I found a similar paper that has one author in common (Meenhard Herlyn).  It seems to have some theory in common.  Please find attached."
10 hours ago
Ainara Iturbe Zumeta replied to Ainara Iturbe Zumeta's discussion 'New therapy for vitiligo?'
"Thanks Flavio :-) I don't have the full paper, only these two connections. I will try to find something else and if I find it, I will share with you. "
18 hours ago

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Forum

NB UVB and protopic on genital area

Started by Luis. Last reply by FLAVIO 2 hours ago. 25 Replies

Dear all, I'm new on the forum. 34 year old with vitilgo since I was 10. After protopic during some years I only have vit on penis and perianal zone. I visit my derm and he recommended to me NB UVB +…Continue

New therapy for vitiligo?

Started by Ainara Iturbe Zumeta. Last reply by Ainara Iturbe Zumeta 5 hours ago. 4 Replies

Hello,The week before I read an article who talked about vitiligo and a new possible therapy for its. I read it in spanish (I give you the connection to read this article below). However I tried to…Continue

Functional treatment (minimum suggestion)

Started by FLAVIO yesterday. 0 Replies

Hi Friends,  if you are planning to follow a Functional Treatment, I'd like to share with you the following suggestion that should be discussed with your Doctor.FUNCTIONAL TREATMENT PROTOCOL  1- 9W…Continue

need advice

Started by Paulina Moreno . Last reply by Paulina Moreno yesterday. 4 Replies

I have been hiding underneath my make up since I was in 8th grade and now I am a senior in high school. I'm tired of hiding my vitiligo since it makes me spend money on products to keep it hidden and…Continue

adrenal fatigue and vitiligo

Started by johnny mullaney. Last reply by Chris K on Saturday. 13 Replies

Hi all......coming to the conclusion that my vitiligo has been caused by adrenal fatigue and stressful moments in my life. Definitely had more depigmentation during difficult times. Adrenal fatigue…Continue

NSV (Genetic Predisposition x Cause x Trigger x Untrigger x Cure)

Started by FLAVIO. Last reply by Chris K on Saturday. 7 Replies

Hi Friends, I would like to share with you some concepts that I've been thinking about, so that any feedback would be very welcome to improve my constant amateur research about NSV (non-segmental…Continue

Hair Dye Question

Started by Paul D. Last reply by Paul D on Saturday. 4 Replies

Does anyone know of a safe hair dye for people with vitiligo?I have never dyed my hair but was thinking of doing it recently. I've been getting more grey which is probably natural as I'm getting near…Continue

Melanocyte transplantation by dr Mulekar

Started by Milan Borkovic. Last reply by Bamsegutt on Saturday. 8 Replies

Hi everyone , my name is Milan and I have a facial segmental vitiligo for nearly 5 years now. I need a word of advice or even a recommendation about this matter: do You know someone who did this type…Continue

Oxidative stress test

Started by Fay. Last reply by Lily on Friday. 4 Replies

I have read about a urine test for oxidative stress...dies anyone think this is worthwhile, or have any recommendations ? Thanks

Need help with Xtrac

Started by Alexander Quin. Last reply by Lily on Friday. 7 Replies

Hi friends, I have finally have the money and go ahead from my insurance company for Xtrac treatment. My dermatologist initially said he was going to treat all my spots but now that we've started, he…Continue

Tags: xtrac

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    Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.

    To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.

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