"You should have replied 'have you always been that insensitive, or is it something you are working on!'"
Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch.
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Groups
Good Links
Research:
Support:
Children:
International:
Resources:
Support:
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Weblap (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Photos
Latest Activity
Erica Heber replied to Erica Heber's discussion 'Steroid Cream is working!!!!!!!'"Kris...yes, I also take a ton of supplemental vitamins but nothing was working until the cream. I take the vitamins for general health but not sure they impact the Vitiligo at all as I have been taking the vitamins for almost a year. I…"
Michelle Pease replied to Melissa moots's discussion 'Hives and vitiligo'"Yes! I too have had bouts of hives with my vit. Mine would flare worse in the evenings, covering large patches and would itch and get puffy. I also had this strange thing where if I got scratched, the scratch marks would swell and…"
Danielle posted a discussionWhat cheers you up??
Having a little bit of a down week, my feet have been taking off this months and are changing rapidly. A man I used to know asked me "what happened to your hands?" and I explained he then followed with "that's a shame you used to have such beautiful skin"…thanks
Danielle replied to Danielle's discussion 'Exposure to Sun::'"I just got back from a cruise and while in Mexico I met ana with Vitilgo who said being in the sun all the time "cured him" and he only gets a white spot if he scratches himself…food for thought "
Maryann Kwiat replied to Kelly Walker's discussion 'Protopic' in the group Parents' Corner"Hello, I am new to this. My son has just been diagnosed, he is 8 years old. We were denied protopic and given desonide lotion instead. So far, it has not done anything. in fact, I think he has lost more pigment. the…"
Christie replied to Howard Fisher's discussion 'What works and doesn't work?'"Protopic is also very expensive! Thank goodness my insurance covers their part! Praying it works for you! :)"
James Davis commented on James Davis's photo
IMG_1431
"both of my hands are like this as well, my right is worse , the whole top of my head and neck and chin are like this too, fortunately it don't show up as much on my face because of the way I wear my beard, I didnt think something like this…"
Howard Fisher commented on James Davis's photoIMG_1431
"Jim, thought I was looking at a photo of my own hand. That's just how both of mine hands look. Good luck with you treatment."
Howard Fisher replied to Howard Fisher's discussion 'What works and doesn't work?'"Thank you for your reply. I think I'll take your advice and apply it only to the affected areas. A lot of little area and some medium/large. However, as much as this stuff costs, I'll take the time to do that. My ELIDEL costs $59 for 30mg.…"
James Davis replied to Danielle's discussion 'Exposure to Sun::'"I spent a week in the sun in Arizona, unprotected, and got a sun burn from hell, unfortunetly i did not get the same results as you.. I did blister and peeled, but when all the burnt skin came off I has a super tan everywhere except on my spots,…"
Forum
What cheers you up??
Started by Danielle. Last reply by Mike 26 minutes ago. 1 Reply 0 Likes
Having a little bit of a down week, my feet have been taking off this months and are changing rapidly. A man I used to know asked me "what happened to your hands?" and I explained he then followed…Continue
Steroid Cream is working!!!!!!!
Started by Erica Heber. Last reply by Erica Heber 4 hours ago. 15 Replies 2 Likes
Hello all! I just wanted to post that my steroid cream, Desoximetasone, is definitely working. It has been 1 month since I started applying it every day and the freckling is really starting up! My…Continue
Hives and vitiligo
Started by Melissa moots. Last reply by Michelle Pease 6 hours ago. 1 Reply 0 Likes
Has anyone experienced hives with their vit? I used to get hives in high school, right before track meets, then they thought it was stress/ excitement And possible sugar intake. Later in my early…Continue
Exposure to Sun::
Started by Danielle. Last reply by Danielle 7 hours ago. 12 Replies 0 Likes
Has anyone else been told to never go in the sun???Continue
What works and doesn't work?
Started by Howard Fisher. Last reply by Christie 11 hours ago. 3 Replies 0 Likes
I was diagnosed about a year ago (am 69 years old). Dr. #1 prescribed TRIAMCINOLONE cream which I used but had no effect.Decided to get a second opinion and Dr. #2 prescribed ELIDEL. I've been using…Continue
My excimer laser treatment experience
Started by Shamira yesterday. 0 Replies 0 Likes
I've had vitiligo for 3 years but it has really picked up in the last year. Protopic worked well on my face and Lidex (steroid) ointment worked well on my hands (but I am getting new spots…Continue
MELANOCYITE TRANSFUR
Started by Hana Teferi. Last reply by Bamsegutt on Sunday. 5 Replies 0 Likes
Some time ago there were some vitis from this group who has got free offer by dr .Vivik we haven`t heard the result Is there any one who has appdates or any other exprience. This webcite is claiming…Continue
Oral steroids for vitiligo
Started by aishna sharma. Last reply by Smit Shah on Sunday. 17 Replies 2 Likes
Dear friends, I was diagnosed with bit about 2 months ago. The spots appeared on my fingertips, elbow and base of fingers. They were small spots but I could see the numbers increasing everyday. I was…Continue
desensitive spots
Started by James Davis on Sunday. 0 Replies 0 Likes
Good Evening, I have a question, the spots on my hand and my face are very sensitive, is there anything I can put on it to kinda quiet it down, it feels like a minor burn that will never heal.Continue
Th17, Tregs, and Th1 cells
Started by kalvin. Last reply by kalvin on Saturday. 3 Replies 0 Likes
I thought Th17 is inducing autoimmunity but on the other hand Th17 produce IL-10, IL-22 cytokines which inhibits autoimmune disease, and Tregs induce Th17 by producing TGF beta, while Tregs inhibit…Continue
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