I'm so glad I found this site!

My son was diagnosed with vitiligo this time last year. In fact, his first sign of vitiligo arrived during the same exact trip we are going on again in the next few weeks. What seemed like was a very dry spot (I think it was pityriasis alba)on his outside corner mouth area got sunburned and is now vitiligo. So far that’s the only vitiligo spot he has and we are currently using protopic twice a day and it seems to be slooooooowly shrinking (not filling in). Anyway, we are going back to the Rivera Maya for spring break and I’m really stressing out about the sun exposure to that area. I am really good about putting sunscreen on his face and that area (Neutrogena 100+, I know there’s no evidence to additional benefit for anything over 30+, but I just feel better putting on the 100), and I just recently bought a UPF water resistant hat he can wear in the pool/ocean. I have our itinerary set up so that we are doing some excursions during the day that will allow us to be in the shade, but I know there’s going to be days where he’s going to want to swim in the pool and beach. I was thinking about maybe putting a waterproof bandaid over his spot, but I don’t know if I’m going over board, and I also don’t want him to know that I’m stressing about it. Any suggestions on what you have done when you were in the sun for a long period of time?  He’s latino, so when’s in the sun, he gets pretty tan quickly. 

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  • Btw,  beautiful boy.

    Sunscreen with zinc (best ones). I recommend the following:  Aubrey Organics Natural Sun Broad Spectrum SPF45

    Attention:  The 3 majors vitiligo causes are:

    -physical traumas/burn/friction

    -oxidative stress

    -stress hormones

    Check www.vitiligomap.com

    So, sun burn is really really a big problem.  Keep him away from the sun between 9AM to 4PM.   Under the tent is not enough.

    On the other hand, If you pass too much sun screen, you will be generating a lot of friction, which is not good too.

    Suggestion: Wake up very early.  Enjoy the beach until 9-9:30 and return after 4PM.

    Sorry for being strait forward.

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