Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Latest Activity
"I called Dr. Le Poole last year, 2020 before the Coronavirus became a much bigger problem than it should have been. She told me that she will call me if I get selected. It was my dermatologist who recommended that I call her. Unfortunately, I…"
National Vitiligo Foundation Friends
For people with an interest in sharing their skills, time, and passion to help the NVF achieve its goals.
"At the Veteran's Affairs derm clinic, they had a full body UVB chamber. I only went once a week but noticed small amounts of repigmentation. Since the Coronavirus, I haven't been able to go. As soon as the government gives the all-clear, I…"
"My mother has vitiligo since the '80s. Mine started in 1997 and was slow developing while I was in the military. Although there was plenty of stress in the army, I did a lot of physical training. I believe that because of being active in…"
Good Links
Research:
Support:
- Vitiligo Support International (VSI)
- Vitiligo Support and Awareness Foundation (VITSAF)
- Vitiligo Bond
- VITFriends Facebook
- VITFriends Website
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Hungary (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Forum
Interview with Dr. Caroline Le Poole on Vitiligo Reversal in Mice
Started by Steve Hargadon. Last reply by DP Nazareno Apr 9. 43 Replies 27 Likes
Today I recorded a phone interview with Dr. Le Pool on her research that was just published in Science Translation Medicine. As you can see from the following articles, this is considered a very…Continue
Narrow Band UVB Phototherapy in Treatment of VITILIGO
Started by VIJAY AGGARWAL. Last reply by DP Nazareno Apr 9. 4 Replies 0 Likes
Hi AllI want to know if Narrow Band UVB Phototherapy really works in treatment of Vitiligo ?Continue
I have vitiligo， will my children have vitiligo, too?
Started by Lucy X. Last reply by DP Nazareno Apr 9. 1 Reply 0 Likes
Children born to parents who both have the disorder are more likely to develop vitiligo.However, most children will not get vitiligo even if one parent has it. In children with focal and segmental…Continue
Recover
Started by dinesh. Last reply by Alain Mar 9. 11 Replies 1 Like
Since 2011 i hv this,,,i stop medicine 2018 but now i recover wothout too much efforts,,its just lifestyle diseases,if anyone wants to know i will helpContinue
New spot.
Started by Christopher Mathew Alex. Last reply by Alain Mar 9. 1 Reply 0 Likes
This week I had found a new spot on my foot, which was damaged due to skin dryness. I think my spots are increasing due to the skin damage. What do you think ?Continue
Vitiligo Healing eBooks
Started by Rekha Jain. Last reply by Prafulla Jain Dec 7, 2020. 3 Replies 5 Likes
I have got a couple of eBooks about vitiligo healing. I would love to share it with you guys. Just drop a request email to vitiligo.diary@gmail.com. Happy healingContinue
Tags: Vitiligo eBooks, eBooks
Vitiligo Singles and Dating
Started by nathalie pelletier. Last reply by Marty BlackEagle-Carl Nov 11, 2020. 28 Replies 0 Likes
Hi everyone! A few months back I noticed quite a few people on here whowere interested in forging relationships and/or looking for a romanticconnection, so i started a site for vitiligo singles. Come…Continue
dating people with vitiligo
Started by Jodie . Last reply by Marty BlackEagle-Carl Nov 11, 2020. 3 Replies 0 Likes
Hey I was just wondering if there are any sites out there for people who want to date people with vitiligo. Thanks :)
Welcome!
Started by Steve Hargadon. Last reply by Sue Nov 11, 2020. 271 Replies 22 Likes
I started this network because I have vitiligo. My vitiligo is very moderate, and I am light-skinned, so may not be too noticeable. But I've always wanted some more immediate forum for those with…Continue
Dating with vitiligo. ..
Started by Kandi Marchelle. Last reply by Ashish Agarwal Oct 22, 2020. 15 Replies 3 Likes
Does anyone know of a free da
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Me and my Vitiligo
Added by Kelly 16 Comments 6 Likes
Worldwide Vitiligo Web Meet-ups!
Send Your Photo to Our "Uniquely Beautiful" Site!
Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.
To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.
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