Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Latest Activity
"Shen,
I do not run the studies I received this information in my email from Dr. John Harris at the University of Massachusetts. You can go onto clinicaltrials.gov to see if there is a study near you.
I think Phase 3 of this study for…"
Shen heng replied to Sue's discussion 'Exciting news for Vitiligo Community!'"Dear Sue,
thanks for your exciting news about this Vitiligo Clinical Trials, May I ask how long the 3rd trials can be finished?
and if it's success, when can we use this treatment?
thanks,
best regards
Shen Heng"
"Hello everyone. My name is Serdar. I'm from Turkey and I'm a Christian. I would like to communicate with anyone abt vtiligo or anything els."
Good Links
Research:
Support:
- Vitiligo Support International (VSI)
- Vitiligo Support and Awareness Foundation (VITSAF)
- Vitiligo Bond
- VITFriends Facebook
- VITFriends Website
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Hungary (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Forum
Exciting news for Vitiligo Community!
Started by Sue. Last reply by Sue Jul 4. 3 Replies 3 Likes
Cutting-Edge Developments in Vitiligo Clinical TrialsContinue
Results with new Innovabiologics therapy
Started by MIchelle Hammer Jun 23. 0 Replies 0 Likes
Wanted to provide an update on a relatively new therapy I tried nearly a year ago. I've been impressed...Some background: After trying UVB unsuccessfully for 4 months and no results with topical…Continue
Tags: V1, Innovabiologics
It seems just a similarity, but it's the same causative factor: Oxidation!
Started by Robot Jun 3. 0 Replies 0 Likes
Hi Friends,All the pictures below have one thing in common: The oxidation caused by free oxygen radicals.Despite the effects are noticeable on the surface, the damage starts usually from inside.So,…Continue
Avoiding vitiligo on face
Started by Robot. Last reply by Robot Jun 3. 4 Replies 0 Likes
According to my studies, physical trauma, friction, pressure, injuries and oxidative stress on a daily…Continue
A chance to get your questions answered
Started by Heidi Savage. Last reply by Heidi Savage Jun 3. 2 Replies 0 Likes
Hey guys! Hope you’re all having a lovely day!I’ve had vitiligo for 15 years and have been in remission for several years now. I’m currently in the process of putting a blog together, which will…Continue
I started to cry, too.
Started by Steve Hargadon. Last reply by Surbhi Bansal Jun 2. 27 Replies 27 Likes
I just received this message from someone who saw the http://UniquelyBeautiful.net photo page and requested to join Vitiligo Friends:"the disease is now…Continue
Newly diagnosed I am devastated!!
Started by Maria. Last reply by Dave Catrain May 31. 10 Replies 1 Like
I am 32 female married living in London and have one son who is 2.I have been diagnosed with hyperthyroid last year and this month with vitiligo.I have it on my hands and I don’t still know how to…Continue
Preventing Re-Pigmentation
Started by Ish. Last reply by Jackie O May 28. 7 Replies 1 Like
I'm roughly 75% depigmented and going through depigmentation; but starting to have trouble with re-pigmentation spots.Has anyone else gone through this? Any suggestions on how to avoid/eliminate them?Continue
depigmentation
Started by janis gordon. Last reply by Jackie O May 28. 45 Replies 1 Like
has anyone tried depigmentation, and what are the side effects if any. Continue
Vitiligo Treatment
Started by Ketan. Last reply by Ketan May 20. 9 Replies 0 Likes
I am looking for controlling the spread. It's almost covered the exposed areas. Currently in Mumbai and don't want to try allopathic other than UVB if effective.Looking for suggestions and also…Continue
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African Americans with V…
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Texas Vitiligo Group
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Me and my Vitiligo
Added by Kelly 16 Comments 6 Likes
Worldwide Vitiligo Web Meet-ups!
Send Your Photo to Our "Uniquely Beautiful" Site!
Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.
To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.
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