"Happy Holi to all"
Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Latest Activity
srinatha replied to srinatha's discussion 'Physician guide'"Yes, initially it cures later it is not effective"
Ketan replied to Ketan's discussion 'Vitiligo Treatment'"Thank you for all the replies. They are really helpful."
Derma Matrimony (Online Vitiligo Matrimony)
DermaMatrimony.com is an online matrimonial marriage platform for people with Vitiligo (Leucoderma) & other skin conditions.Marry someone with same or similar skin condition & say good bye to the fear of judgement or feeling of insecurity…See More
"Hi Ketan, from my previous experiences i can strongly say "your worry factor can be directly proportional to vitiligo spreading". As you are right person to judge your condition, if your vitiligo is rapidly spreading then for atleast few…"
Vitiligo Natural Healing Ideas
Let's discuss natural healing ideas for a better living. Diet controlPositive lifestyleNatural herbs Dietary supplementsYoga and Pranayam for stress managementSee More
"As we know autoimmune diseases can be triggered by various reasons and very specific to each individual. A long term Vit D deficiency can be "one of contributing factor to auto immune". So if you have vit D deficiency then taking vit D…"
vivek mishra replied to Rekha Jain's discussion 'Does Vitamin D help with Vitiligo?'"I do agree with you,, my body is deficienct of vitamin D3 , for that I am taking it orally, and I can see desired improvement"
Люция replied to Ketan's discussion 'Vitiligo Treatment'"Ямом в кпкой клиники вам делали операцию по пересадке мелоноцитов"
Rekha Jain posted a discussionDoes Vitamin D help with Vitiligo?
Dr Joseph Georghy, a Sydney based cosmetic surgeon says that almost all of his patients with vitiligo has been found to be deficient in vitamin D. Vitamin D plays a crucial role in normal immune system. Thus, addressing the vitamin D deficiency…See More
Good Links
Research:
Support:
- Vitiligo Support International (VSI)
- Vitiligo Support and Awareness Foundation (VITSAF)
- Vitiligo Bond
- VITFriends Facebook
- VITFriends Website
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Hungary (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Forum
Physician guide
Started by srinatha. Last reply by srinatha yesterday. 1 Reply 1 Like
Any one tried octamop lotion guyd
Vitiligo Treatment
Started by Ketan. Last reply by Ketan on Monday. 5 Replies 0 Likes
I am looking for controlling the spread. It's almost covered the exposed areas. Currently in Mumbai and don't want to try allopathic other than UVB if effective.Looking for suggestions and also…Continue
Does Vitamin D help with Vitiligo?
Started by Rekha Jain. Last reply by sukrutha on Monday. 2 Replies 0 Likes
Dr Joseph Georghy, a Sydney based cosmetic surgeon says that almost all of his patients with vitiligo has been found to be deficient in vitamin D. Vitamin D plays a crucial role in normal immune…Continue
Preventing Re-Pigmentation
Started by Ish. Last reply by Audrey VanStockum on Saturday. 4 Replies 1 Like
I'm roughly 75% depigmented and going through depigmentation; but starting to have trouble with re-pigmentation spots.Has anyone else gone through this? Any suggestions on how to avoid/eliminate them?Continue
Am i on correct treatment for newly occurred vitiligo (2 months)?
Started by Shakthi. Last reply by Yam on Saturday. 6 Replies 0 Likes
Hi people,Need your suggestion. I noticed before 2 months that my hair below nose (right side) turned white. I removed all my facial hair in beauty parlour and ignored that. Later in the same region…Continue
Creating a whatts app group
Started by Sumit. Last reply by Sumit on Saturday. 2 Replies 0 Likes
Hi,Everyone hope this message reaches to you in good health,I would like to invite you all as i am planning to start a whattsapp group for people like us, so that we all will be connected every time…Continue
Marijuana can cure Vitiligo
Started by Manuj Sharma. Last reply by Manuj Sharma Feb 12. 10 Replies 1 Like
I am using Marijuana, Cannabis,Ganja Bhang from last 4 or 5 years and its helping me out.My patches are going slowly slowly.Patches spreading speed depends on your mentally situation because when you…Continue
Home Phototherapy Unit
Started by Marilyn Washington. Last reply by Sue Feb 10. 5 Replies 0 Likes
I am considering buying a 3-sided unit. Having one at home would be more convenient. I would not have to go to the doctor twice a week for the phototherapy light box. Therefore, I would be saving…Continue
How would you react?
Started by Deena Yanez. Last reply by T.D.Reddy Feb 4. 16 Replies 2 Likes
Well I had something odd happen to me last week. During my lunch break I walked to the Taco Truck of which fellow employees order food and wait. It was raining so I ordered my food and told them I…Continue
depigmentation
Started by janis gordon. Last reply by Jackie O Feb 2. 39 Replies 1 Like
has anyone tried depigmentation, and what are the side effects if any. Continue
Groups
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African Americans with V…
185 members
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Texas Vitiligo Group
146 members
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Me and my Vitiligo
Added by Kelly 16 Comments 6 Likes
Worldwide Vitiligo Web Meet-ups!
RECORDINGS OF PREVIOUS LIVE WEB MEETINGS:Send Your Photo to Our "Uniquely Beautiful" Site!
Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.
To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.
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