Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Latest Activity
Vitiligo in Pennsylvania
When u think there is no one in your area to talk to with the same problems,thoughts or questions...
"Nice to hear you are lucky all the best with your pigmentation.I only took the one J&J/Janssen shot on the 02 Sep 2021 and it had no negative effects on my Vitiligo but I believe that the hand sanitizer did.The reason why I am saying that is…"
"Sorry just replying to this post. I took covid 19 vaccine (Pfizer) 1st dose back in June 2021 and 2nd dose on July 2021. It had no effect on my Vitiligo. I got covid 19 on January of 2022 I can not tell you if it had a negative effect on my Vitiligo…"
Good Links
Research:
Support:
- Vitiligo Support International (VSI)
- Vitiligo Support and Awareness Foundation (VITSAF)
- Vitiligo Bond
- VITFriends Facebook
- VITFriends Website
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Hungary (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Forum
Covid 19 vaccine and Vitiligo
Started by Ian. Last reply by Ian Jun 12. 8 Replies 0 Likes
Hi all I am thinking of getting my Covid 19 vaccine on the 2nd of September 2021 but I am still not 100% sure if its safe for a person with Vitiligo.Did anyone on the forums took the vaccine already…Continue
A new strategy?
Started by Sue. Last reply by Muhammad Fahad Haris May 25. 39 Replies 2 Likes
Members,My doctor recently told me to apply a light oil (olive or coconut) to my vitiligo spots before using my home uvb unit. He said it will help reflect the light and absorb more rays. Afterwards,…Continue
New spot.
Started by Christopher Mathew Alex. Last reply by Audrey VanStockum Aug 20, 2021. 2 Replies 0 Likes
This week I had found a new spot on my foot, which was damaged due to skin dryness. I think my spots are increasing due to the skin damage. What do you think ?Continue
Narrow Band UVB Phototherapy in Treatment of VITILIGO
Started by VIJAY AGGARWAL. Last reply by Audrey VanStockum Aug 20, 2021. 5 Replies 0 Likes
Hi AllI want to know if Narrow Band UVB Phototherapy really works in treatment of Vitiligo ?Continue
Use of tacrolimus
Started by Shweta. Last reply by Audrey VanStockum Aug 20, 2021. 13 Replies 0 Likes
Anybody using tacros 0.1% and have observed the results/ repigmentation.Please share how to apply and how many time to apply and if using UVB lamp along with it helps ?Continue
Hair removal creams
Started by Glen. Last reply by Anumanth Jul 15, 2021. 2 Replies 0 Likes
Can you use hair removal cream if you have vitiligo??
Bella Aurora Lab- Repigment
Started by Ish. Last reply by Ish Jul 4, 2021. 3 Replies 0 Likes
Hi,I came across this product online- has anyone used it!https://bella-aurora.com/en/c/24-repigmentBest wishes,IshContinue
Dating a Vitiligan versus one without vitiligo
Started by Tia War. Last reply by Ashish Agarwal May 7, 2021. 37 Replies 8 Likes
Do vitiligans seek to have relationships with other vitiligans, because of fear of being accepted by those who dont have vitiligo... Who do you feel comfortable dating and why?Continue
Vitiligo Singles and Dating
Started by nathalie pelletier. Last reply by Ashish Agarwal May 7, 2021. 28 Replies 1 Like
Hi everyone! A few months back I noticed quite a few people on here whowere interested in forging relationships and/or looking for a romanticconnection, so i started a site for vitiligo singles. Come…Continue
I need to go on a date!!!
Started by B. Land. Last reply by Ashish Agarwal May 6, 2021. 2 Replies 0 Likes
Being single blows!!!
Groups
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African Americans with V…
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Texas Vitiligo Group
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Me and my Vitiligo
Added by Kelly 16 Comments 6 Likes
Worldwide Vitiligo Web Meet-ups!
Send Your Photo to Our "Uniquely Beautiful" Site!
Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.
To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.
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