Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Latest Activity
"Bless you for taking the time to share this information. I did not choose regimentation as the way to resolve my vitiligo (I decided to depigment); however, that is not to say that ALL forms of vitiligo are resistant to complete and…"
Rekha Jain replied to Rekha Jain's discussion 'Vitiligo Healing eBooks'"I have sent you the eBooks to this email address. I request you to remove this message now because writing personal email ID on a social media platform is not safe. Hence, please delete this message at the earliest. Stay safe!"
Good Links
Research:
Support:
- Vitiligo Support International (VSI)
- Vitiligo Support and Awareness Foundation (VITSAF)
- Vitiligo Bond
- VITFriends Facebook
- VITFriends Website
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Hungary (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Forum
New Vitiligo Trial
Started by Sue. Last reply by Jackie O Sep 10. 1 Reply 1 Like
I received an email from John Harris yesterday regarding a new study for JAK inhibitors. This is a great way for you to get FREE medicine and hopefully have the results you want! I would love to…Continue
Vitiligo Healing eBooks
Started by Rekha Jain. Last reply by Rekha Jain Aug 31. 2 Replies 2 Likes
I have got a couple of eBooks about vitiligo healing. I would love to share it with you guys. Just drop a request email to vitiligo.diary@gmail.com. Happy healingContinue
Tags: Vitiligo eBooks, eBooks
Dragon's Blood Sap for Healing Vitiligo ( Dragons Blood, Croton lechleri)
Started by Esteban Aug 29. 0 Replies 1 Like
I have a friend that told me that his friend used Dragon's Blood Sap for Healing Vitiligo.Has anyone ever tried Dragons Blood, Croton lechleri for Vitiligo?I found it online and it seems to be very…Continue
Narrow Band UVB Phototherapy in Treatment of VITILIGO
Started by VIJAY AGGARWAL. Last reply by VIJAY AGGARWAL Aug 22. 2 Replies 0 Likes
Hi AllI want to know if Narrow Band UVB Phototherapy really works in treatment of Vitiligo ?Continue
Living Dappled- a Vitiligo Blog
Started by Ish. Last reply by Ish Aug 10. 2 Replies 0 Likes
Hi,I came across 'Living Dappled'. Its a blog for people with Vitiligo and there's some inspirational posts as well as lots of information which may be useful:…Continue
Use of tacrolimus
Started by Shweta. Last reply by Shweta Aug 6. 2 Replies 0 Likes
Anybody using tacros 0.1% and have observed the results/ repigmentation.Please share how to apply and how many time to apply and if using UVB lamp along with it helps ?Continue
Exciting news for Vitiligo Community!
Started by Sue. Last reply by Julian Aristizabal O Aug 2. 4 Replies 3 Likes
Cutting-Edge Developments in Vitiligo Clinical TrialsContinue
A snapshot of a depigmented person
Started by Jackie O. Last reply by Riksal Bhutia Jul 27. 1 Reply 1 Like
Many of you have asked that I upload a photo of myself. Well, I finally uploaded a snapshot to my profile. This is what I looked like at the conclusion of depigmentation, which was back in 2010. …Continue
depigmentation
Started by janis gordon. Last reply by Riksal Bhutia Jul 27. 46 Replies 1 Like
has anyone tried depigmentation, and what are the side effects if any. Continue
Creating a whatts app group
Started by Sumit. Last reply by Anoop Jul 18. 4 Replies 0 Likes
Hi,Everyone hope this message reaches to you in good health,I would like to invite you all as i am planning to start a whattsapp group for people like us, so that we all will be connected every time…Continue
Groups
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African Americans with V…
185 members
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Texas Vitiligo Group
146 members
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Me and my Vitiligo
Added by Kelly 16 Comments 6 Likes
Worldwide Vitiligo Web Meet-ups!
Send Your Photo to Our "Uniquely Beautiful" Site!
Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.
To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.
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