Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Latest Activity
Jackie O replied to maroo's discussion 'Lets count days till we reach our goal (Depigmnetation)'"This is in response to an old post by Fay regarding the arbitrary 50% rule:
I said the same thing, and like you, less than 50% of my body was depigmented. I did not let anyone get in the way of my goal: complete depigmentation. The challenges are…"
Jackie O replied to maroo's discussion 'Lets count days till we reach our goal (Depigmnetation)'"This is in response to an old post by Fay about the arbitrary 50% rule:
I said the same thing, and like you, less than 50% of my body was depigmented. I did not let anyone get in the way of my goal: complete depigmentation. The challenges are…"
dorothy posted a discussionvitiligo patient can apply free treatment
Huahai vitiligo hospital will accept 2 vitiligo patients for free vitiligo treatment every month See More
dorothy posted a photo
vitiligo photos
Vitiligo. One of the most iconic people that we have ever known with vitiligo is Michael Jackson. Here is a rare picture of MJ where you can actually see his spots. Michael was in the public eye and had a very hard time accepting what was happening…
Ganesh joined Monika Chauhan's group
Derma Matrimony (Online Vitiligo Matrimony)
DermaMatrimony.com is an online matrimonial marriage platform for people with Vitiligo (Leucoderma) & other skin conditions.Marry someone with same or similar skin condition & say good bye to the fear of judgement or feeling of insecurity…See More
Good Links
Research:
Support:
- Vitiligo Support International (VSI)
- Vitiligo Support and Awareness Foundation (VITSAF)
- Vitiligo Bond
- VITFriends Facebook
- VITFriends Website
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Hungary (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Forum
Lets count days till we reach our goal (Depigmnetation)
Started by maroo. Last reply by Jackie O 21 hours ago. 103 Replies 0 Likes
Hello everyone, My name is Maria. I am 27 and having vitiligo since 20 yrs now. I decided to Depigmentation my remaining pigments (I am already 50%). I started this discussion for those who wants to…Continue
Tags: 20%, benoquin, depigmentation
vitiligo patient can apply free treatment
Started by dorothy yesterday. 0 Replies 0 Likes
Huahai vitiligo hospital will accept 2 vitiligo patients for free vitiligo treatment every month…Continue
A snapshot of a depigmented person
Started by Jackie O Oct 31. 0 Replies 1 Like
Many of you have asked that I upload a photo of myself. Well, I finally uploaded a snapshot to my profile. This is what I looked like at the conclusion of depigmentation, which was back in 2010. …Continue
best treatment advice???
Started by dorothy. Last reply by jomon methil Oct 28. 1 Reply 0 Likes
the effect of vitiligo treatment
Started by dorothy. Last reply by jomon methil Oct 28. 6 Replies 0 Likes
vitiligo diet in winter
Started by dorothy. Last reply by Jackie O Oct 26. 1 Reply 0 Likes
what should we pay attention about food diet Continue
Where does everyone go online to meet people?
Started by Luke. Last reply by Jeroen Oct 24. 1 Reply 1 Like
Hi All,Where does everyone go online to meet people?What sites are popular?Thanks Continue
how safe is uvb phototherapy
Started by nikhil singhal. Last reply by nikhil singhal Oct 6. 11 Replies 0 Likes
Hi everyone,Is anyone doing uvb phototherapy here. I wanted to know how safe it is. I have read lot of research papers and blogs and they say since last 30 years no case of skin cancer has come due…Continue
vitiligo diet in autumn
Started by dorothy Sep 24. 0 Replies 0 Likes
what is good diet in autumn for vitiligo patientsContinue
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African Americans with V…
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Me and my Vitiligo
Added by Kelly 16 Comments 6 Likes
Worldwide Vitiligo Web Meet-ups!
RECORDINGS OF PREVIOUS LIVE WEB MEETINGS:Send Your Photo to Our "Uniquely Beautiful" Site!
Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.
To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.
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