Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Latest Activity
Good Links
Research:
Support:
- Vitiligo Support International (VSI)
- Vitiligo Support and Awareness Foundation (VITSAF)
- Vitiligo Bond
- VITFriends Facebook
- VITFriends Website
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Hungary (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Forum
Living Dappled- a Vitiligo Blog
Started by Ish. Last reply by Ish Aug 10. 2 Replies 0 Likes
Hi,I came across 'Living Dappled'. Its a blog for people with Vitiligo and there's some inspirational posts as well as lots of information which may be useful:…Continue
Use of tacrolimus
Started by Shweta. Last reply by Shweta Aug 6. 2 Replies 0 Likes
Anybody using tacros 0.1% and have observed the results/ repigmentation.Please share how to apply and how many time to apply and if using UVB lamp along with it helps ?Continue
Exciting news for Vitiligo Community!
Started by Sue. Last reply by Julian Aristizabal O Aug 2. 4 Replies 3 Likes
Cutting-Edge Developments in Vitiligo Clinical TrialsContinue
A snapshot of a depigmented person
Started by Jackie O. Last reply by Riksal Bhutia Jul 27. 1 Reply 1 Like
Many of you have asked that I upload a photo of myself. Well, I finally uploaded a snapshot to my profile. This is what I looked like at the conclusion of depigmentation, which was back in 2010. …Continue
depigmentation
Started by janis gordon. Last reply by Riksal Bhutia Jul 27. 46 Replies 1 Like
has anyone tried depigmentation, and what are the side effects if any. Continue
Creating a whatts app group
Started by Sumit. Last reply by Anoop Jul 18. 4 Replies 0 Likes
Hi,Everyone hope this message reaches to you in good health,I would like to invite you all as i am planning to start a whattsapp group for people like us, so that we all will be connected every time…Continue
Results with new Innovabiologics therapy
Started by MIchelle Hammer Jun 23. 0 Replies 0 Likes
Wanted to provide an update on a relatively new therapy I tried nearly a year ago. I've been impressed...Some background: After trying UVB unsuccessfully for 4 months and no results with topical…Continue
Tags: V1, Innovabiologics
It seems just a similarity, but it's the same causative factor: Oxidation!
Started by Robot Jun 3. 0 Replies 0 Likes
Hi Friends,All the pictures below have one thing in common: The oxidation caused by free oxygen radicals.Despite the effects are noticeable on the surface, the damage starts usually from inside.So,…Continue
Avoiding vitiligo on face
Started by Robot. Last reply by Robot Jun 3. 4 Replies 0 Likes
According to my studies, physical trauma, friction, pressure, injuries and oxidative stress on a daily…Continue
A chance to get your questions answered
Started by Heidi Savage. Last reply by Heidi Savage Jun 3. 2 Replies 0 Likes
Hey guys! Hope you’re all having a lovely day!I’ve had vitiligo for 15 years and have been in remission for several years now. I’m currently in the process of putting a blog together, which will…Continue
Groups
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African Americans with V…
185 members
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Texas Vitiligo Group
146 members
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Me and my Vitiligo
Added by Kelly 16 Comments 6 Likes
Worldwide Vitiligo Web Meet-ups!
Send Your Photo to Our "Uniquely Beautiful" Site!
Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.
To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.
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