Make Friends, Share Healing Ideas, Inspire Hope
Welcome!
Welcome to the Vitiligo friends network. This is a place where those with Vitiligo, their family, and their friends can share information and stay in touch. Started in 2007, we are now over 7,000 members!
Please consider going to the forum and posting a welcome message. Be sure to let us know what part of the world you are from. You can also use the search box at the top right to look for topics that are already in discussion!
To avoid spammers on the network, we have to approve your membership after you sign up to join (filling out the profile questions helps us a lot). If you send spam or inappropriate messages you will be banned from the network. If you receive unsolicited off-topic messages, or see any inappropriate material here, please report it. We have a no-tolerance policy for those who claim a "cure" or use this space to advertise.
So glad you are here!
--Steve
P.S. Commercial posts, including repeated endorsements of "cures," will be removed.
Latest Activity
Sue replied to Robot's discussion 'Avoiding vitiligo on face'"Thanks for sharing this!
From my own personal note, I do believe that the Vitiligo on my hands (from constant washing), feet (from shoes) and elbows (from resting on chair) have been some of the hardest parts of my body to re-pigment. This friction…"
Robot posted a discussionAvoiding vitiligo on face
According to my studies, physical trauma, friction, pressure, injuries and oxidative stress on a daily basis might be the main causative reasons for…See More
Good Links
Research:
Support:
- Vitiligo Support International (VSI)
- Vitiligo Support and Awareness Foundation (VITSAF)
- Vitiligo Bond
- VITFriends Facebook
- VITFriends Website
Children:
International:
- AFB Association Francaise du Vitiligo
- AriV - Associazione Ricerca Informazione per la Vitiligine
- ASPAVIT asociacion de pacientes de Vitiligo
- Deutscher Vitiligo-Bund e.V. (Germany)
- DVV Deutscher Vitiligo Verein e.V.
- Italian Vitiligo Society
- Korean Vitiligo Association
- Spanish Association of Vitiligo Patients
- SSPV+ La Societe Suisse du Psoriasis et du Vitiligo
- Vitiligo Society UK
- Vitiligo Hungary (Hungarian)
Resources:
- Dr. Boissy Basic Vitiligo Information Paper
Forum
Avoiding vitiligo on face
Started by Robot. Last reply by Sue Apr 12. 1 Reply 0 Likes
According to my studies, physical trauma, friction, pressure, injuries and oxidative stress on a daily…Continue
tacrolimus ointment 0.1 w/w
Started by amit. Last reply by Kishor Ullewad Mar 30. 6 Replies 0 Likes
tacrolimus ointment 0.1 w/w very effective for small patchesContinue
Creating a whatts app group
Started by Sumit. Last reply by Sumit Mar 27. 3 Replies 0 Likes
Hi,Everyone hope this message reaches to you in good health,I would like to invite you all as i am planning to start a whattsapp group for people like us, so that we all will be connected every time…Continue
New Clinical Trial for Vitiligo at 5 locations of US
Started by Sue. Last reply by Kishor Ullewad Mar 23. 2 Replies 0 Likes
CLINICAL TRIALNEW CLINICAL TRIAL IS AVAILABLE FOR VITILIGOWe are pleased to share news about a new nationwide clinical trial for vitiligo. The name of the trial is “An Open-Label Pilot Study of the…Continue
Physician guide
Started by srinatha. Last reply by srinatha Mar 19. 1 Reply 1 Like
Any one tried octamop lotion guyd
Vitiligo Treatment
Started by Ketan. Last reply by Ketan Mar 18. 5 Replies 0 Likes
I am looking for controlling the spread. It's almost covered the exposed areas. Currently in Mumbai and don't want to try allopathic other than UVB if effective.Looking for suggestions and also…Continue
Does Vitamin D help with Vitiligo?
Started by Rekha Jain. Last reply by sukrutha Mar 18. 2 Replies 0 Likes
Dr Joseph Georghy, a Sydney based cosmetic surgeon says that almost all of his patients with vitiligo has been found to be deficient in vitamin D. Vitamin D plays a crucial role in normal immune…Continue
Preventing Re-Pigmentation
Started by Ish. Last reply by Audrey VanStockum Mar 16. 4 Replies 1 Like
I'm roughly 75% depigmented and going through depigmentation; but starting to have trouble with re-pigmentation spots.Has anyone else gone through this? Any suggestions on how to avoid/eliminate them?Continue
Am i on correct treatment for newly occurred vitiligo (2 months)?
Started by Shakthi. Last reply by Yam Mar 16. 6 Replies 0 Likes
Hi people,Need your suggestion. I noticed before 2 months that my hair below nose (right side) turned white. I removed all my facial hair in beauty parlour and ignored that. Later in the same region…Continue
Marijuana can cure Vitiligo
Started by Manuj Sharma. Last reply by Manuj Sharma Feb 12. 10 Replies 1 Like
I am using Marijuana, Cannabis,Ganja Bhang from last 4 or 5 years and its helping me out.My patches are going slowly slowly.Patches spreading speed depends on your mentally situation because when you…Continue
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African Americans with V…
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Texas Vitiligo Group
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Me and my Vitiligo
Added by Kelly 16 Comments 6 Likes
Worldwide Vitiligo Web Meet-ups!
RECORDINGS OF PREVIOUS LIVE WEB MEETINGS:Send Your Photo to Our "Uniquely Beautiful" Site!
Uniquely Beautiful showcases the unique beauty of those with Vitiligo--both for others to see, and for those of us with Vitiligo to appreciate our own beauty. While our VitiligoFriends.org is a private network, Uniquely Beautiful is a separate site for public view in order to encourage others with Vitiligo. However, there are no names or contact information, just photos of faces.
To have your photo be part of Uniquely Beautiful send a face shot or a photo that has your face in it (without makeup, and whether or not you have Vitiligo on your face). We'll add it to the wall of beautiful Vitiligo faces. Someone with Vitiligo coming to this site might feel instantly better about him or herself, knowing the rest of us exist. Someone who doesn't have it would hopefully begin to recognize the diversity and beauty of who we are.
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